The UK Parliament's Joint Committee on Human Rights (JCHR) is currently holding an inquiry into the UK Government’s response to Covid-19. This inquiry is looking at how people's human rights may have been affected.
 
At BIHR we work with people across the UK to help use human rights every day. We think it is important that the JCHR hears about the real life experiences of people during Covid-19.

The Scottish Parliament's Equalities and Human Rights Committee (EHRiC) is also currently conducting a survey into the impact of the COVID-19 pandemic on equalities and human rights. If you are in Scotland we will use your responses in our submission to the EHRiC. 

We are gathering evidence for both inquiries from people and their families accessing care and support; advocacy and campaigning organisations and people working in health and care. This survey is for people who access (or are trying to access) care and support, their family members and people who care about them. The other two survey links can be found at the end if you would like to share these and help amplify more voices please do.

We have put together the survey questions below to help us to do this. Most questions are about your experience but some are about you. We ask about you to help us to understand how Covid-19 has impacted people differently based on gender, race, age etc.

You can complete the questions below. All the questions are optional, so you do not have to answer them all if you do not want to. All your answers are anonymous, we cannot trace these back to people. 

Thank you for taking the time to help us ensure people's real life experiences are part of the evidence to the JCHR (and the EHRiC in Scotland).

 
Please note that we can’t provide legal advice or support to individuals. If you need help for your situation you can find more information on groups to contact here.

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* 1. Which gender best describes you?

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* 2. Is your gender different from the one you were assigned at birth?

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* 3. What age are you?

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* 4. Do you consider yourself disabled under the terms of the Equality Act 2010?

The Equality Act defines a disabled person as someone who has a physical or mental impairment that has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities.

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* 5. How would you describe your religion or belief?

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* 6. Which sexual orientation best describes you?

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* 7. Which race/ethnicity best describes you? (Please choose only one.)

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* 8. Where do you live?

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* 9. Do you provide unpaid care to another person?

ABOUT CARE AND SUPPORT NEEDS

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* 10. Do you have care and support needs, are you a family member of someone who does, or are you someone who cares about someone with care and support needs?

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* 11. How would you define the care and support you receive (or that of your family member or person you care about)? You can pick as many as are relevant.

ABOUT YOUR EXPERIENCES DURING COVID-19

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* 12. We have been made aware of lots of issues with care and support during Covid-19. The question looks big because we want to make it easier for you to tell us about any issues you have experienced.

Please be aware that this question includes descriptions of distressing issues which you may not want to read. You do not have to answer this question if you do not want to.

Have you or your family member or the person you care about experienced any of the following? Please tick all that apply:

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* 13. Do you believe any of the above issues you experienced were also about treating you worse than other people because of a particular identity or characteristic you have?

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* 14. Has the care and support of you, your family member or the person you care about been affected by Covid-19?

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* 15. Has the way people can visit you (or the way you can visit your family member/the person you care about) been affected by Covid-19?

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* 16. Since the start of Covid-19 have you been involved in decision-making affecting your care and support (or that of your family member/the person you care about)?

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* 17. Since the start of Covid-19, when decisions have been made about your care and support (or the care and support of your family member/the person you care about), were you told why this decision was made and for how long it would last?

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* 18. When a decision has been made about your care or support (or the care and support of your family member/the person you care about) did staff or the organisation providing that care and support tell you about how you could challenge this decision or raise an issue about it?

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* 19. If you raised an issue or challenged a decision was this reviewed or addressed by the staff or organisations providing the care and support (or another organisation you complained to)?

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* 20. Do you think those making decisions about your care and support during Covid-19 considered your specific characteristics or needs (or those of your family member/the person you care about).

This could include (but is not limited to) considering any disabilities, mental health or capacity issues, race or ethnicity, age, gender or other characteristics or needs.

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* 21. Since the start of Covid-19, when a decision is being made about your care and support (or the care and support of your family member/the person you care about) have decision-makers told you about your human rights in this situation?

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* 22. Do you feel able to raise a concern or challenge with staff about your human rights when decisions are being made about your care and support (or that of your family member/person you care about)?

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* 23. Since the start of Covid-19, if a decision is made about your care and support (or that of you family member/ person you care about) were you told which law allowed this change?

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* 24. Since the start of Covid-19, if a decision has been made about your care and support (or that of your family member/the person you care about) were you made aware that your (or their) legal rights under the Human Rights Act have NOT changed in this time?

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* 25. Since the start of Covid-19 have you used human rights to create change in your life (or the lives of others), for example to get a decision or policy changed?  And/or have you worked with staff who are using human rights positively in their work? You can share your story below - this may be helpful to include in the evidence to the JCHR:

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* 26. Last question. Is there anything you would like to tell us about your human rights during Covid-19?

Thank you very much for completing our survey to help us understand how people's human rights are being affected during Covid-19.

If you would like to complete or share our survey for people working in health and care you can do so here: https://www.surveymonkey.co.uk/r/62JS2XS

If you would like to complete or share our survey for Advocates and Campaigners you can do so here: https://www.surveymonkey.co.uk/r/JCHR_AandC

At BIHR we are committed to amplifying the voices of people's who's rights may be at risk throughout this pandemic and beyond. Our Communities of Practice provide a platform for people to be heard on key human rights issues we work on which affect their life and work. This feeds into the evidence we submit to policy makers, inquiries and reviews. Click here to find out more and get involved: https://www.bihr.org.uk/news/now-live-bihrs-communites-of-practice
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