Introduction

Shaping Our Lives is taking on a new shape with the help of a four year grant from the National Lottery Community Fund. We have a mission to advance the inclusive involvement of d/Deaf and Disabled people, service users, carers and other people who experience inequalities or barriers when accessing services. We want to provide people with support and information to ensure your voices are meaningfully and equally represented when service providers are making decisions about how their services should be run.

The people who use services should be asked about their experiences in order to improve these services. This is usually called consultation, engagement, involvement, or co-production. The organisations involved might be a health or social care provider, a regulator, a research body or educational establishment.

Our research shows that often the experiences of people from diverse communities are not heard in these involvement activities because the way they are done does not allow everyone to take part equally.

We really want to hear what you think would help you to take part and influence services to work better for you and other people in similar situations.

Please answer this short survey to tell us what you think. It should take no longer than 10 minutes.

There is no involvement payment offered for completing this survey. Taking part is voluntary, and you can drop out at any time. You can skip any question.

Your answers will be kept anonymous and confidential. We do not ask for your name or address, but we would be grateful if you would answer some optional monitoring questions at the end. The information collected is for our use only.

Start of survey:

In these questions we use 'involvement activities' to mean when you have shared your story of using services or your experience of having an impairment or long term health condition. Some examples of involvement activities are completing a survey about a local health service, taking part in a focus group with your local authority or providing lived experiences to students on a social work degree course.

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