I-DSD 2021 Symposium (online) Survey- Feedback Evaluation

I-DSD 2021 Symposium - online

Dear Delegate, thank you for attending the 8th I-DSD online meeting. The I-DSD steering committee and the project management group would be grateful if you could complete the following questionnaire which should not take more than 5 minutes of your time.

Thursday 8th - Friday 9th July 2021

Online

Contact: Jillian.Bryce@glasgow.ac.uk

CPD certificates are issued upon submission of the evaluation form.

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* 1. Name (optional)

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* 2. E-mail address (optional)

Email Address

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* 3. Organisation/Department

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* 4. Job Title

I-DSD 2021 Symposium Day 1
Meet The Expert Sessions 1.1 and 1.2
Chair: TBC

Question Title

* 5. Disorder of gonadal development - Olaf Hiort (Luebeck, Germany)
1 is the lowest, 4 is the highest

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Question Title

* 6. Disorder of androgen excess - Ana Biason-Lauber (Frieburg, Switzerland)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Session 1 - International Collaboration
Chair: TBC

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* 7. The activities and future directions of I-DSD/I-CAH - Faisal Ahmed (Glasgow, UK)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical Value	Clinical Value 1	Clinical Value 2	Clinical Value 3	Clinical Value 4	Clinical Value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Question Title

* 8. Sex hormone replacement therapy guidelines - Anna Nordenstrom (Stockholm, Sweden)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical Value	Clinical Value 1	Clinical Value 2	Clinical Value 3	Clinical Value 4	Clinical Value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Session 2 - Mapping the Gonads & Adrenals
Chair: TBC

Question Title

* 9. Single cell genomic atlas for human disorders - Roser Vento-Torma (Cambridge, UK)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Question Title

* 10. Mapping the adrenals - John Achermann (London, UK)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Project workshops 1.1 and 1.2
Chair: TBC

Question Title

* 11. If you attended the project workshops, how interested are you in joining the proposed study groups

	Very interested	Interested	Not interested	Did not attend
CAH studies	CAH studies Very interested	CAH studies Interested	CAH studies Not interested	CAH studies Did not attend
AIS related studies	AIS related studies Very interested	AIS related studies Interested	AIS related studies Not interested	AIS related studies Did not attend
Gonadal outcome studies	Gonadal outcome studies Very interested	Gonadal outcome studies Interested	Gonadal outcome studies Not interested	Gonadal outcome studies Did not attend
Studies of psychological care	Studies of psychological care Very interested	Studies of psychological care Interested	Studies of psychological care Not interested	Studies of psychological care Did not attend

Additional Comments

I-DSD 2021 Symposium Day 2
Meet The Expert 2.1 and 2.2
Chair: TBC

Question Title

* 12. Disorder of androgen synthesis - Christa Flueck (Bern, Switzerland)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

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* 13. Hypogonadotrophic hypogonadism - Luca Persani (Milan, Italy)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Session 3 - Minipuberty
Chair: TBC

Question Title

* 14. The endocrinology of minipuberty - Katharina Main (Copenhagen)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

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* 15. The neurobehavioural outcomes of minipuberty - Melissa Hines (Cambridge, UK)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Session 4 - Is There More To DSD Than Meets The Eye?
Chair: TBC

Question Title

* 16. Cardiovascular outcomes in XY DSD - Angela Lucas-Herald (Glasgow, UK)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

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* 17. Androgen signalling and its role in DSD - Nadine Hornig (Kiel, Germany)

	1	2	3	4	Did not attend
Scientific content	Scientific content 1	Scientific content 2	Scientific content 3	Scientific content 4	Scientific content Did not attend
Clinical value	Clinical value 1	Clinical value 2	Clinical value 3	Clinical value 4	Clinical value Did not attend
Likelihood of altering your clinical or research practice	Likelihood of altering your clinical or research practice 1	Likelihood of altering your clinical or research practice 2	Likelihood of altering your clinical or research practice 3	Likelihood of altering your clinical or research practice 4	Likelihood of altering your clinical or research practice Did not attend

Project workshops 2.1 and 2.2
Chair: TBC

Question Title

* 18. If you attended the project workshops, how interested are you in joining the proposed study groups

	Very interested	Interested	Not interested	Did not attend
SF1	SF1 Very interested	SF1 Interested	SF1 Not interested	SF1 Did not attend
Growth outcomes in DSD	Growth outcomes in DSD Very interested	Growth outcomes in DSD Interested	Growth outcomes in DSD Not interested	Growth outcomes in DSD Did not attend
Quality improvement	Quality improvement Very interested	Quality improvement Interested	Quality improvement Not interested	Quality improvement Did not attend
I-TS	I-TS Very interested	I-TS Interested	I-TS Not interested	I-TS Did not attend

Additional Comments

Commercial bias

Question Title

* 19. Did all speakers provide their potential conflict of interest declaration with the sponsor(s) as a 2nd slide in their presentation?

1 - Dont' know, 2 - No, 3 - Yes a few, 4 - Yes mostly, 5 - Yes all

	1	2	3	4	5
Please rate as appropriate.	Please rate as appropriate. 1	Please rate as appropriate. 2	Please rate as appropriate. 3	Please rate as appropriate. 4	Please rate as appropriate. 5

Additional comments

Question Title

* 20. Do you agree that the information was overall free of commercial and other bias?

1 - Don't know, 2 - Strongly disagree, 3 - Rather disagree, 4 - Rather agree, 5 - Strongly agree

	1	2	3	4	5
Please rate as appropriate.	Please rate as appropriate. 1	Please rate as appropriate. 2	Please rate as appropriate. 3	Please rate as appropriate. 4	Please rate as appropriate. 5

Additional comments

Question Title

* 21. How do you rate the relevance of this Symposium to your need to keep informed about DSD and CAH research

1 - no part relevant, 2 - little of relevance, 3 - fairly relevant, 4 - mostly relevant, 5 - highly relevant

	1	2	3	4	5
Please rate as appropriate.	Please rate as appropriate. 1	Please rate as appropriate. 2	Please rate as appropriate. 3	Please rate as appropriate. 4	Please rate as appropriate. 5

additional comments

Question Title

* 22. What was your overall impression of this event?

	Excellent	Good	Satisfactory	Mediocre	Poor
Programme	Programme Excellent	Programme Good	Programme Satisfactory	Programme Mediocre	Programme Poor
Quality of Education	Quality of Education Excellent	Quality of Education Good	Quality of Education Satisfactory	Quality of Education Mediocre	Quality of Education Poor
Organisation	Organisation Excellent	Organisation Good	Organisation Satisfactory	Organisation Mediocre	Organisation Poor

Additional Comments

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* 23. What did you like most about this event?

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* 24. What did you like least about this event?

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* 25. Are there any topics/speakers you would like to see included in/invited to future events?

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* 26. Please rank the presentation formats for future meetings in order of preference

Lectures

Meet the Expert session

Case discussions

Project/study Workshops

Training workshops

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* 27. What can be done to improve the online meeting if it was held again in the future in between the biennial I-DSD meeting

Thank you for taking time to complete this survey!

Question Title

* 1. Name (optional)

Question Title

* 2. E-mail address (optional)

Question Title

* 3. Organisation/Department

Question Title

* 4. Job Title

Question Title

* 5. Disorder of gonadal development - Olaf Hiort (Luebeck, Germany)1 is the lowest, 4 is the highest

Question Title

* 6. Disorder of androgen excess - Ana Biason-Lauber (Frieburg, Switzerland)

Question Title

* 7. The activities and future directions of I-DSD/I-CAH - Faisal Ahmed (Glasgow, UK)

Question Title

* 8. Sex hormone replacement therapy guidelines - Anna Nordenstrom (Stockholm, Sweden)

Question Title

* 9. Single cell genomic atlas for human disorders - Roser Vento-Torma (Cambridge, UK)

Question Title

* 10. Mapping the adrenals - John Achermann (London, UK)

Question Title

* 11. If you attended the project workshops, how interested are you in joining the proposed study groups

Question Title

* 12. Disorder of androgen synthesis - Christa Flueck (Bern, Switzerland)

Question Title

* 13. Hypogonadotrophic hypogonadism - Luca Persani (Milan, Italy)

Question Title

* 14. The endocrinology of minipuberty - Katharina Main (Copenhagen)

Question Title

* 15. The neurobehavioural outcomes of minipuberty - Melissa Hines (Cambridge, UK)

Question Title

* 16. Cardiovascular outcomes in XY DSD - Angela Lucas-Herald (Glasgow, UK)

Question Title

* 17. Androgen signalling and its role in DSD - Nadine Hornig (Kiel, Germany)

Question Title

* 18. If you attended the project workshops, how interested are you in joining the proposed study groups

Question Title

* 19. Did all speakers provide their potential conflict of interest declaration with the sponsor(s) as a 2nd slide in their presentation?1 - Dont' know, 2 - No, 3 - Yes a few, 4 - Yes mostly, 5 - Yes all

Question Title

* 20. Do you agree that the information was overall free of commercial and other bias?1 - Don't know, 2 - Strongly disagree, 3 - Rather disagree, 4 - Rather agree, 5 - Strongly agree

Question Title

* 21. How do you rate the relevance of this Symposium to your need to keep informed about DSD and CAH research1 - no part relevant, 2 - little of relevance, 3 - fairly relevant, 4 - mostly relevant, 5 - highly relevant

Question Title

* 22. What was your overall impression of this event?

Question Title

* 23. What did you like most about this event?

Question Title

* 24. What did you like least about this event?

Question Title

* 25. Are there any topics/speakers you would like to see included in/invited to future events?

Question Title

* 26. Please rank the presentation formats for future meetings in order of preference

Question Title

* 27. What can be done to improve the online meeting if it was held again in the future in between the biennial I-DSD meeting

* 5. Disorder of gonadal development - Olaf Hiort (Luebeck, Germany)
1 is the lowest, 4 is the highest

* 19. Did all speakers provide their potential conflict of interest declaration with the sponsor(s) as a 2nd slide in their presentation?

1 - Dont' know, 2 - No, 3 - Yes a few, 4 - Yes mostly, 5 - Yes all

* 20. Do you agree that the information was overall free of commercial and other bias?

1 - Don't know, 2 - Strongly disagree, 3 - Rather disagree, 4 - Rather agree, 5 - Strongly agree

* 21. How do you rate the relevance of this Symposium to your need to keep informed about DSD and CAH research

1 - no part relevant, 2 - little of relevance, 3 - fairly relevant, 4 - mostly relevant, 5 - highly relevant