7th International DSD Symposium - São Paulo 2019

Dear Delegate, thank you for attending the 7th international DSD meeting in São Paulo. The I-DSD steering committee and the project management group would be grateful if you could complete the following on-line questionnaire which should not take more than 5 minutes of your time.

Thursday 4th - Saturday 6th July 2019
Faculdade de Medicina da Universidade de São Paulo,Brazil

 
Contact: Jillian.Bryce@glasgow.ac.uk

CPD certificates are issued upon submission of the evaluation form.  

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* 1. Name (optional)

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* 2. E-mail address (optional)

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* 3. Organisation/Department

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* 4. Job Title

The Training Workshop was held on Thursday morning 4th July before the start of the symposium. Please complete this section if you attended all or part of this event.

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* 5. Please rate the value of the individual workstations (1 is the least, 4 is the best)

  1 2 3 4 Did not attend
Using the I-DSD/CAH Registry, Salma Ali & Angela Lucas-Herald (Glasgow)
Bioinformatics tools, Amit Pandey (Bern)
Communication with a new patient, Amy Wisniewski (Oklahoma City)
I-DSD Symposium Day 1
Session 1- Setting the Scene
Chair: Berenice B Mendonca & Faisal Ahmed

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* 6. Setting the Scene for the session: "Patients experiences introduced by Guilherme Guaragna-Filho" (Porto Alegre, Brazil)

  1 2 3 4 Did not attend
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Clinical Value
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Session 2 - The Impact of Collaborators
Chair: Anna Nordenstrom & Ivo Arnold

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* 7. Impact of European Collaboration - Olaf Hiort (Lubeck, Germany)

  1 2 3 4 Did not attend
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* 8. Impact of collaboration in North America - David Sandberg (Ann Arbor, USA)

  1 2 3 4 Did not attend
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* 9. A network for DSD in the Asia & Pacific Region - Reiko Horikawa (Tokyo, Japan)

  1 2 3 4 Did not attend
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* 10. I-DSD/I-CAH & EuRRECa - a template for the future - Faisal Ahmed  (Glasgow, UK)

  1 2 3 4 Did not attend
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* 11. Future Directions Round Table

  1 2 3 4 Did not attend
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Session 3 - Lecture
Chair: Berenice B. Mendonca

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* 12. Family-centered, interdisciplinary care:  Educating DSD people and their families and loved ones - Amy Wisniewski (Oklahoma City, USA)

  1 2 3 4 Did not attend
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I-DSD Symposium Day 2
Session 4 - Improving Diagnostic Outcomes in DSD
Chair: Ana Latronica & Vincent Harley

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* 13. The strengths and pitfalls of genetics - Ken McElreavey (Paris, France)

  1 2 3 4 Did not attend
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* 14. The strengths and pitfalls of biochemistry - Richard Auchus (Ann Arbor, USA)

  1 2 3 4 Did not attend
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* 15. Combining genetics & biochemistry - Christa Fluck (Bern, Switzerland)

  1 2 3 4 Did not attend
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Session 5 - Improving Health Outcomes in Sex Chromosome Disorders
Chair: Amy Wisniewski & Durval Damiani

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* 16. Turner Syndrome - Theo Sas (Rotterdam, Netherlands)

  1 2 3 4 Did not attend
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* 17. Klinefelter Syndrome - Claus Gravholt (Aarhus, Denmark)

  1 2 3 4 Did not attend
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* 18. 45X/46XY - Martine Cools (Ghent, Belgium)

  1 2 3 4 Did not attend
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* 19. Challenging case discussions in DSD
Presenters: Hedi Claahsen & Berenice Mendonca
Moderators:  David Sandberg & Rodolfo Rey

  1 2 3 4 Did not attend
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Session 6 - Congenital Adrenal Hyperplasia
Chair: Christa Fluck & Gil Guerra-Junior

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* 20. Diagnosis of CAH - Roxana Marino (Buenos, Aires, Argentina)

  1 2 3 4 Did not attend
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* 21. Controversies in steroid replacement - Tania Bachega (Sao Paulo, Brazil)

  1 2 3 4 Did not attend
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* 22. Critical outcomes in virilising CAH - Hedi Claahsen (Nijmegen, Netherlands)

  1 2 3 4 Did not attend
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I-DSD Symposium Day 3

I-DSD Symposium Day 3
Session 7 - Improving Surgical Outcomes
Chair: Eduardo Correa Costa &Steven Chernausek

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* 23. Female Genitoplasty - Maria Helena Sircili (Sau Paulo, Brazil)

  1 2 3 4 Did not attend
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* 24. Male Genitoplasty - Francisco Tibor Denes (Sau Paulo, Brazil)

  1 2 3 4 Did not attend
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* 25. Postponing surgery in CAH:  Nothing is ever black and white - Ignacio Bergada (Buenos Aires, Argentina)

  1 2 3 4 Did not attend
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* 26. Auditing outcomes of surgery - Stuart O'Toole (Glasgow, UK)

  1 2 3 4 Did not attend
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Session 8 - This house believes that it is time to discard the term 'DSD'
Chair: Berenice B. Mendonca & Faisal Ahmed

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* 27. For - Eric Vilain (Los Angeles, USA)

  1 2 3 4 Did not attend
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* 28. Against - Andy Greenfield (Oxford, UK)

  1 2 3 4 Did not attend
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Commercial bias

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* 29. Did all speakers provide their potential conflict of interest declaration with the sponsor(s) as a 2nd slide in their presentation?

1 - Dont' know,  2 - No,  3 - Yes a few, 4 - Yes mostly,  5 - Yes all

  1 2 3 4 5
Please rate as appropriate.

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* 30. Do you agree that the information was overall free of commercial and other bias?

1 - Don't know,  2 - Strongly disagree,  3 - Rather disagree,  4 - Rather agree,  5 - Strongly agree

  1 2 3 4 5
Please rate as appropriate.
Social Events and Summary

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* 31. Social Event

  1 2 3 4 Did not attend
Social Dinner

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* 32. How did you rate the quality and educational value of the two oral communication sessions?

1 - poor, 5 - excellent 

  1 2 3 4 5
Please rate as appropriate.

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* 33. How do you rate the relevance of this Symposium to your need to keep informed about DSD research

1 - no part relevant, 2 - little of relevance, 3 - fairly relevant, 4 - mostly relevant,  5 - highly relevant

  1 2 3 4 5
Please rate as appropriate.

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* 34. How did you rate the quality and educational value of the poster session?

1 - poor, 5 - excellent 

  1 2 3 4 5
Please rate as appropriate.

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* 35. What was your overall impression of this event?

  Excellent Good Satisfactory Mediocre Poor
Programme
Quality of Education
Organisation
Catering
Venue

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* 36. What did you like most about this event?

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* 37. What did you like least about this event?

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* 38. Are there any topics you would like to see included in future events?

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* 39. Have you any comments about the meeting in general?

Thank you for taking time to complete this survey!

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