Long Covid is defined as signs and symptoms that continue for more than 12 weeks and develop following an infection consistent with Covid 19. You may experience Long Covid even if you were not acutely ill in the first place. Common symptoms include breathlessness, brain fog and fatigue. Not everyone with Long Covid, particularly those who were ill early in the pandemic, will have been tested for Covid-19.

If you have been experiencing the symptoms of Long Covid (also known as Post-Covid Syndrome),  then please share your experience by completing the survey.

Your feedback will help us to understand what support is needed for people living with Long Covid and will be used to produce a report to inform the relevant organisations of what you have been experiencing, and recommend how they can design services and support to better meet your needs.

If you have any questions about this survey or wish to give us more information about your situation, please contact us at info@healthwatchbwd.co.uk. 

Thank you for taking part in this survey.

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* 1. Did you have a disability or long term health condition before the Covid-19 pandemic? (We are asking this question to understand if this may have impacted on the Long Covid support that you received, or otherwise).

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* 2. Not everyone who has Long Covid will have been diagnosed with either Covid-19 or Long Covid. We still want to hear from you either way. We want to know what it's like getting diagnosed and whether or not having a diagnosis makes a difference to your experience. Which of the following best describes you?

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* 3. Are you currently experiencing symptoms of Long Covid?

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* 4. What are the main symptoms you have experienced or are still experiencing?

  Never experienced/got better within 12 weeks Mild - did not stop me doing anything Moderate - made it difficult to do something Severe - made it difficult or impossible to do something
Shortness of breath & other respiratory difficulties e.g. cough
Fatigue
Loss of smell, taste, appetite
Mobility issues, muscle pain & loss of stamina
Memory issues or brain fog
Anxiety and other mental health issues
Headache
Fever
Rashes or other skin related symptoms

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* 5. How long have you been experiencing these symptoms?

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* 6. Do you feel able to manage your conditions through self care?

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* 7. Have you sought clinical help for long Covid symptoms?

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* 8. If yes, who are you currently receiving support from?

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* 9. If you have been diagnosed with Long Covid, how long have you had to wait before receiving support, after your first referral?

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* 10. Have you sought support from other wellbeing services in the community for long Covid?

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* 11. Has living with Long Covid had an effect on your life? Tell us what it has been like and how it has effected you, your quality of life, relationships, wellbeing, your ability to work, complete caring and parental roles and anything else.

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* 12. Has long Covid had an impact on your mental health? If yes please tell us more about the impact this has had on your life.

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* 13. Have you spoken to your employer about your experiences of long Covid?

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* 14. How would you rate the support you have received from the following

  Very poor Poor Average/ok Good Excellent N/A
GP/community nurse
Occupational therapist
Physiotherapist
Dietician
Mental health practitioner/psychologist
Other community wellbeing service
Employer

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* 15. What would help you now and in the future?

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* 16. What is your age?

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* 17. What gender are you?

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