Section 1

The Home Oxygen Assessment Service is currently commissioned by NHS Tees Valley Clinical Commissioning Group (CCG) (all areas except Hartlepool and Stockton-on-Tees), NHS Sunderland CCG, NHS County Durham CCG, NHS South Tyneside CCG and the Gateshead area of Newcastle and Gateshead CCG.

The current service consists of a team of 13 specialist nurses responsible for assessing and reviewing patient's oxygen needs. The clinical team is supported by an admin team based in South Shields.

The CCGs are keen to understand the views and experience of patients who have used the Oxygen at Home Service, how they access it, any barriers to service, what ‘good’ looks like etc. This is in order that they can build a more detailed picture of the service and feed this into work ongoing across the region via Integrated Care Partnerships (ICPs) that are looking closely at the way services are organised.

We are therefore interested in your views of the service as this will help us to potentially improve it for you and others.

This questionnaire has been designed to capture your views and experiences of the Oxygen at Home Service provided by Air Liquide. A summary of responses and any quotes you provide may be included anonymously in a report to recommend any future changes to the service.

Please complete the questionnaire by using the “tick” boxes by 16th July 2021.
 
All the information you provide will be kept anonymous therefore please be as honest as possible when completing the questionnaire as the information you provide will be valuable to the review of the current service.  

If you require help completing the questionnaire, please contact Judith McGuinness, senior communication and engagement officer on 07785601944 or email judith.mcguinness@nhs.net

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* 1. How long have you been using Home Oxygen?

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* 2. How often do you use your oxygen?

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* 3. Did the Home Oxygen Assessment Nurse explain in detail the reasons why your oxygen was prescribed?

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* 4. Would you have liked more information?

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* 5. Did the Home Oxygen Nurse involve you in treatment decisions?

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* 6. Was the time you waited for an assessment reasonable?

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* 7. Would you have liked the opportunity for more involvement in the decision making process?

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* 8. Did you feel that your privacy and dignity was respected throughout the assessment?

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* 9. When was your last review?

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* 10. Do you feel the Home Oxygen Assessment Customer Service Team is courteous, helpful and knowledgeable?

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* 11. Would you know how and who to call with any questions, problems or concerns regarding your home oxygen service?

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* 12. If you have called the team with any concerns regarding your home oxygen service please rate how happy you have been with their response on a scale of 1 – 10 (1 being poor and 10 being excellent)

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* 13. Do you think the information and leaflets given to you by the Home Oxygen Assessment Nurse is clear and easy to understand?

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* 14. Are you satisfied with the training and instruction given to you for the safe use of the equipment by the oxygen supply technician at installation?

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* 15. Do you use any aids to carry your oxygen?

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* 16. If you answered Yes to Q15 is the weight of the portable equipment manageable for you?

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* 17. Does the portable equipment allow you to leave your home?

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* 18. Has home oxygen helped you to increase the amount of time you spend doing physical exercise or other activities?

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* 19. Thinking about the impact of home oxygen treatment on your quality of life, please score each of the statements below.
(Use: 1 for very important, 2 for quite important, 3 for little importance, 4 for no relevance to you)

  1 2 3 4
Being able to breathe well and not being short of breath
Being able to do my daily activities
Not having to be admitted to hospital due to breathing problems
Not having to call the emergency services due to breathing problems
Having emotional wellbeing
The time it takes for the Home Oxygen Service Assessment nurse to attend to me
The explanation for using the equipment
Reduces the fear of death
The shame I feel when people see me with the oxygen equipment
The independence that the oxygen equipment gives to me
To be able to maintain contact with other people

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* 20. Thinking about how the service could be improved, please score the statements below. 
(Use: 1 for very important, 2 for quite important, 3 for little importance, 4 for not relevant to you)

  1 2 3 4
Being able to get advice from the service at any time during the day
More information on how to manage holiday oxygen
More information on the safe use of oxygen
Being able to be referred to other healthcare professionals/services e.g. pulmonary rehab
Easier access to information leaflets
Access to online resources
More frequent visits from the Home Oxygen Assessment Nurse
Less frequent visits from the Home Oxygen Assessment Nurse
Service accessible by video/app

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* 21. Do you have any problems with the storage of your oxygen cylinders?

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* 22. On a scale of 1 to 10 (1 being poor to 10 being excellent) how do you rate your overall experience of the Home Oxygen Assessment service?

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* 23. Is there anything the Home Oxygen Assessment service needs to stop doing as it isn’t helping you keep well or live a full life independently?

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* 24. Do you feel that there is any duplication with the Home Oxygen Assessment Service nurses and the nurses from the respiratory team at the hospital?

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* 25. Please share any other feedback that you would like us to consider as part of this review

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