Melanoma patient experience survey

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* 1. Did you receive your skin cancer diagnosis during the lockdown period of the Covid-19 pandemic?

Yes

Don't know

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* 2. How did you receive your skin cancer diagnosis?

In person, at hospital

In person, elsewhere

Over the phone

In a letter

Other (please specify)

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* 3. How do you feel about the way you were informed?

It was done sensitively

It could have been done more sensitively

It was not done sensitively at all

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* 4. Did you have someone with you to support you at this time?

Yes, a friend/family member

Yes, a member of staff

No, but I didn't want anyone there

No, but I wish I'd had someone there

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* 5. Did you understand the explanation of your diagnosis?

Yes, completely

Yes, to some extent

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* 6. Were you given contact details for your clinical nurse specialist who acts as your keyworker (telephone number/ email address)?

Yes

I don't know

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* 7. Were you given clear information about your skin cancer diagnosis?

Yes

No, but I didn't want or need it

No, but I wish I'd been given it

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* 8. How did you receive information about your diagnosis and pathway?

Written information

Hospital Skin cancer website

Other (please specify)

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* 9. Were you involved as much as you wanted to be in decisions about your care and treatment?

Yes

No, but I didn't want or need to be more involved

No, but no decisions were available

No, and I would have liked to be more involved

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* 10. Were you offered a Holistic Needs Assessment? This is an opportunity to discuss your needs and concerns including physical, social, psychological and spiritual

Yes and I accepted

Yes but I declined

No, but I did not require this

No, and I would have liked this

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* 11. If you did speak to someone about your needs and concerns, who did you do this with?

Specialist Nurse

Hospital doctor / consultant

Other (please specify)

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* 12. Were you given a full skin examination? This is where a doctor checks all of your skin to ensure there are no other lesions of concern.

Yes

Can't remember

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* 13. If so, at what point did this happen?

Initial GP appointment

Initial hospital appointment

After lesion removal

Later

Other (please specify)

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* 14. Were you offered a Vitamin D blood test?

Yes

Can't remember

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* 15. How easy is it for you to contact your named Clinical Nurse Specialist (CNS)?

Easy

Varies

Difficult

I don't know who my named CNS is

I haven't tried to contact them

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* 16. How has your Clinical Nurse Specialist helped you?

Provided information to me

Provided information to my family

Provided emotional support to me

Provided emotional support to my family

Co-ordinated my care and treatment

Explained 'what's next' for me

None of the above

Other

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* 17. When you had important questions to ask a doctor, did you understand the answers?

All of the time

Most of the time

Rarely or never - and I didn't get answers

Rarely or never - but I got answers from a nurse

I did not ask questions

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* 18. While at hospital, did you feel you had enough privacy...

When discussing your care

When being examined

When receiving treatment

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* 19. Were you treated with dignity and respect throughout your care?

Yes, always

Yes, sometimes

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* 20. If there was a support group would you be interested in attending it?

Yes

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* 21. If you attended an education session, did you find it beneficial?

Yes

If you have any comments please let us know

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* 22. Do you think the face-to-face education session was delivered at the right time during your journey?

Yes

No - I would have preferred to attend sooner after diagnosis

No, I would have preferred longer to recover from treatment

N/A - did not attend face-to-face

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* 23. If you accessed the online patient education session, did you find it helpful?

Very helpful

Quite helpful

Not helpful

It caused me stress / anxiety

N/A - did not use

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* 24. If you accessed the hospital skin cancer website, did you find it helpful?

Very helpful

Quite helpful

Not helpful

It caused me stress / anxiety

N/A - did not use

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* 25. Is there any additional information you would have liked us to provide you with relating to your diagnosis, treatment or moving on following diagnosis?

Melanoma patient experience survey

Question Title

* 1. Did you receive your skin cancer diagnosis during the lockdown period of the Covid-19 pandemic?

Question Title

* 2. How did you receive your skin cancer diagnosis?

Question Title

* 3. How do you feel about the way you were informed?

Question Title

* 4. Did you have someone with you to support you at this time?

Question Title

* 5. Did you understand the explanation of your diagnosis?

Question Title

* 6. Were you given contact details for your clinical nurse specialist who acts as your keyworker (telephone number/ email address)?

Question Title

* 7. Were you given clear information about your skin cancer diagnosis?

Question Title

* 8. How did you receive information about your diagnosis and pathway?

Question Title

* 9. Were you involved as much as you wanted to be in decisions about your care and treatment?

Question Title

* 10. Were you offered a Holistic Needs Assessment? This is an opportunity to discuss your needs and concerns including physical, social, psychological and spiritual

Question Title

* 11. If you did speak to someone about your needs and concerns, who did you do this with?

Question Title

* 12. Were you given a full skin examination? This is where a doctor checks all of your skin to ensure there are no other lesions of concern.

Question Title

* 13. If so, at what point did this happen?

Question Title

* 14. Were you offered a Vitamin D blood test?

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* 15. How easy is it for you to contact your named Clinical Nurse Specialist (CNS)?

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* 16. How has your Clinical Nurse Specialist helped you?

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* 17. When you had important questions to ask a doctor, did you understand the answers?

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* 18. While at hospital, did you feel you had enough privacy...

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* 19. Were you treated with dignity and respect throughout your care?

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* 20. If there was a support group would you be interested in attending it?

Question Title

* 21. If you attended an education session, did you find it beneficial?

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* 22. Do you think the face-to-face education session was delivered at the right time during your journey?

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* 23. If you accessed the online patient education session, did you find it helpful?

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* 24. If you accessed the hospital skin cancer website, did you find it helpful?

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* 25. Is there any additional information you would have liked us to provide you with relating to your diagnosis, treatment or moving on following diagnosis?

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* 26. Is there anything you'd like to tell us about your care and treatment, either positive or an area for improvement?