Service user views - adults

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* 1. What metabolic condition do you have?

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* 2. Have you had concerns or felt that you might need help, now or in the past, in any of the following areas?

Discussing feelings around the diagnosis

Coping with an uncertain future

Cognitive skills, concentration and attention or memory difficulties

Coping with how your condition affects your relationships, e.g. family, friends, work

Managing the demands of daily life while looking after your needs

Feeling depressed, anxious or angry in relation to the metabolic condition

Feeling unhappy about the way you look

Feeling unhappy about how your body feels or functions

Coping with adjustment, change and loss

Coping with how your condition affects your sexuality

Coping with how your condition affects your self-esteem and your identity

Coping with sticking to treatments, e.g. diet or medication

Coping with the side effects of treatment

Knowing how to talk to other people about the diagnosis

Coping with feelings about hospital admission/s

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* 3. If you had any of the concerns above, how much impact did they have overall on your life?

Not at all

A little

Quite a lot

Very much

N/A

Not at all

A little

Quite a lot

Very much

N/A

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* 4. If you had any of the concerns above, how much impact did they have overall on family life?

Not at all

A little

Quite a lot

Very much

N/A

Not at all

A little

Quite a lot

Very much

N/A

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* 5. Have you/your partner ever seen a psychologist about a difficulty or concern related to your metabolic condition

Yes

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* 6. If yes, how helpful was the input from the psychologist? (If no, click 'ok' to move on to the next question)

Not at all helpful

Quite helpful

Very helpful

Not at all helpful

Quite helpful

Very helpful

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* 7. Have you ever requested to see a psychologist but not been able to access this service?

Yes

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* 8. If you wanted to see a psychologist about any difficulty relating to your metabolic condition, would you prefer to see:

A specialist metabolic psychologist at a hospital or clinic (further from home)

A psychologist in your local service (who can get advice from a specialist metabolic psychologist)

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* 9. Any other comments you have about your experiences of psychology support for people with metabolic conditions, or suggestions for how this might be improved: