Genetics and Pulmonary Arterial Hypertension

**Please only complete this survey if you have a diagnosis of pulmonary arterial hypertension**

Pulmonary arterial hypertension (PAH) can be connected to other conditions, or it can have no apparent cause. This type of PAH is known as idiopathic PAH.  In rare cases, PAH can be caused by faulty genes and this is known as familial (or hereditary) PAH.

Working with a leading heart and lung researcher from the University of Cambridge, we want to know what people understand about the role of genetics in PAH. This will help us identify any information gaps and ensure the right resources and support are available to the pulmonary hypertension community.

If you have PAH, please take five minutes to share your voice in this important survey.
Click 'ok' to begin...

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* 1. What is your gender?

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* 2. What is your age? 

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* 3. In what year did you receive your diagnose of PAH? 

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* 4. What type of PAH do you have? 

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* 5. Before taking this survey, were you aware that PAH can be linked with a fault in genes?

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* 6. Has a healthcare professional ever discussed links between genetics and PAH, and the research and studies around it, with you? 

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* 7. If yes, did you feel you understood what was being discussed?

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* 8. Do you feel there is enough information available to you about the links between genetics and PAH, and the research and studies around it? 

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* 9. The PHA UK is producing its own information materials related to genetics and PAH, that explains the subject area in a clear and accessible way, and in a manner which can be shared with family and friends. How useful would you find this? 

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* 10. If you knew there was a chance of your PAH being caused by a faulty gene, would you want to be referred for genetic testing?

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* 11. If you found out you had a faulty gene causing PAH, would you want your family members to be offered genetic testing?

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* 12. Would you like to make any additional comments about anything covered in this survey?

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