The NHS is currently looking to see how it can best deliver services that are safe and of high quality, which take account of new advances in medicine but also take account of budgetary restraints. Part of this process will be to review the costs of treatment and compare with alternatives that may provide the same effect at a lesser cost. However, it is important that any changes to any treatment are discussed with patients and the benefits and disadvantages clearly considered.

Medications are one of the areas where changes may be made to provide the same level of treatment but at a reduced cost. For instance, when you go to the chemist for over the counter medication you will have a variety of options with a variety of costs for the same treatment. NHS England has outlined some Good Practice Principles to ensure that any changes in patient medication will be communicated and managed correctly. The Patients Association want reassurance that these good practice guidelines are being adhered to and patients are well informed and fully involved in shared decision making about the best treatment for their specific condition.

You have been invited to take part in this survey because you require a biological medication for treatment of a specific medical condition. Your participation will enable better understand of the needs of patients on these types of medications and the issues surrounding changes to medication, involvement in shared decision-making and any educational needs. 

Participation in this survey is entirely voluntary and all responses are strictly confidential. There is no requirement for you to provide any personal information unless you are interested in being involved in a focus group taking place in Birmingham in the next few months. Participation in the focus group is also entirely voluntary but would require you to be resident in or close to Birmingham or able to travel there easily.

Please submit your responses by Friday 31st August 2018. The information you provide in this survey will only be used in accordance with the permissions you give us below. You can view our privacy policy on our website: https://www.patients-association.org.uk/privacy-policy. This project is funded by a non-restricted educational grant from AbbVie. 

What condition(s) has your doctor recommended that you take a biologic medication for?

Question Title

* 1. What condition(s) has your doctor recommended that you take a biologic medication for?

What biological medication/s are you currently taking?

Question Title

* 2. What biological medication/s are you currently taking?

How long have you been on this medication?

Question Title

* 3. How long have you been on this medication?

What do you value most about your current medication? Please tick all that apply

Question Title

* 4. What do you value most about your current medication? Please tick all that apply

Have you recently been changed to a Biosimilar medication? (A biosimilar is a biological medicine highly similar to another already approved biological medicine. Biosimilars are approved according to the same standards of pharmaceutical quality, safety and efficacy that apply to all biological medicines)

Question Title

* 5. Have you recently been changed to a Biosimilar medication? (A biosimilar is a biological medicine highly similar to another already approved biological medicine. Biosimilars are approved according to the same standards of pharmaceutical quality, safety and efficacy that apply to all biological medicines)

Were you consulted prior to the change in your medication?

Question Title

* 6. Were you consulted prior to the change in your medication?

What information were you given?

Question Title

* 7. What information were you given?

On a scale of 1-10 where 1 is very unsatisfied and 10 is very satisfied, how happy are you with your biosimilar medication?

Question Title

* 8. On a scale of 1-10 where 1 is very unsatisfied and 10 is very satisfied, how happy are you with your biosimilar medication?

Were you provided with training or homecare support when your medicine was changed?

Question Title

* 9. Were you provided with training or homecare support when your medicine was changed?

If you are unhappy or have concerns with any aspect of your new medication, please comment in the box below.

Question Title

* 10. If you are unhappy or have concerns with any aspect of your new medication, please comment in the box below.

If you are pleased with any aspect of your new medication, please comment in the box below.

Question Title

* 11. If you are pleased with any aspect of your new medication, please comment in the box below.

If your medication was to be changed to a biosimilar medication, what information would be helpful to make an informed choice?

Question Title

* 12. If your medication was to be changed to a biosimilar medication, what information would be helpful to make an informed choice?

If your medication was to be changed to a biosimilar medication what support would you expect to receive?

Question Title

* 13. If your medication was to be changed to a biosimilar medication what support would you expect to receive?

If your medication was to be changed to a biosimilar medication what concerns might you have?

Question Title

* 14. If your medication was to be changed to a biosimilar medication what concerns might you have?

Do you belong to any charities or groups linked with your condition

Question Title

* 15. Do you belong to any charities or groups linked with your condition

We will be holding a focus group in Birmingham to gather more detailed views on this subject in the coming months. If you might be interested in being involved please leave your email and/or a contact number in the box below.
Name

Question Title

* 16. Name

Number/Email address

Question Title

* 17. Number/Email address

T