IARC 2019 Feedback Question Title * 1. Select one of the following to describe yourself Academic researcher Graduate student or post-doc at academic institution Clinician researcher Industry researcher Industry management or other professional position Advocate representing a non-profit organisation Other (please specify) OK Question Title * 2. Are you primarily interested in a single type of ataxia or multiple types of ataxia? Single Multiple Please specify which type(s) below OK Question Title * 3. Overall how useful or relevant did you find this conference for advancing your work? Extremely useful Very useful Somewhat useful Not so useful Not at all useful OK Question Title * 4. How would you rate the scientific content of this conference? OK Question Title * 5. How valuable is it to have all types of ataxia covered in this type of research conference? Extremely valuable Very valuable Somewhat valuable Not so valuable Not at all valuable OK Question Title * 6. From your point of view was the programe suitably balanced between the various ataxias? Yes No Please add any comments below OK Question Title * 7. Do you prefer large plenary sessions that cover a greater diversity of content or parallel sessions where specific topics or research areas are covered in greater detail? Plenary Parallel Mix of both OK Question Title * 8. Would you find the meeting more valuable if, for some of the meeting, there were parallel sessions for FA v.s. other ataxias, or for more basic research v.s. more clincal research? Yes, FA v.s. other ataxias Yes, basic v.s. clinical research No Please add any comments below OK Question Title * 9. Would you have preferred longer but fewer talks or short but multiple talks in a session? Longer, fewer talks Short, multiple talks OK Question Title * 10. Did you feel there was adequate time for discussion after the presentations? Yes No OK Question Title * 11. Was there adequate time for posters? Yes No OK Question Title * 12. Please rate the organisation of the poster sessions Please add any comments below OK Question Title * 13. Did you find it useful to have the selected flash talks as part of the poster sessions? Yes No OK Question Title * 14. If you attended the mentoring event for junior researchers, did you find it useful? Yes No Do you have any specific feedback about the event or suggestions for improvements? OK Question Title * 15. Was there an area of research that you would have liked to have seen covered that was not featured? Yes No If you answered yes, please specify OK Question Title * 16. Which was the session of greatest interest to you? Therapeutic Approaches and Drug Discovery Genetics of Disease Clinical Trials and Clinical Trial Design Cellular and Animal Models of Disease Natural History, Biomarkers and Endpoints Mechanism of Disease Neurophysiology and the Cerebellum OK Question Title * 17. Did you make new contacts at the conference? Yes No OK Question Title * 18. If yes, how likely do you think it is that the contacts you made at the conference will enhance your work Extremely likely Very Likely Somewhat likely Not so likely Not at all likely OK Question Title * 19. Do you feel that this conference struck the right balance between free time to network and the time devoted to presentations? Yes No Please explain your answer OK Question Title * 20. Would you like to see structured networking opportunities next time? Yes No If no, do you have any ideas for how networking opportunities could be improved for the next conference? OK Question Title * 21. How valuable was the patient perspective offered at the conference? Extremely valuable Very valuable Somewhat valuable Not so valuable Not at all valuable OK Question Title * 22. Would you prefer having the meeting within a town with options to leave the meeting, or do you prefer a more remote/isolated location so that people remain at the meeting for all meals/sessions? Within a town Remote location Please explain your answer OK Question Title * 23. Would you prefer to have organised dinners or to arrange your own meals? Organised dinners Arrange own meals Combination of both Please explain your preference OK Question Title * 24. How often should we repeat this conference? Every year Every 2 years Every 3 years Every 4 years OK Question Title * 25. What length of conference would be most likely to encourage your attendance? 2 days 3 days 4 days 5 days OK Question Title * 26. Do you have any further comments or suggestions? OK DONE
