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Access to Treatment for Bleeding Disorders Survey
The Haemophilia Society are conducting a survey to understand the extent to which people with bleeding disorders receiving treatment through the NHS understand the process by which decisions on the products they are offered and proscribed are made. We are also interested in the extent to which they believe patients’ views are taken into account in this process.
Swedish Orphan Biovitrum Ltd (Sobi) have supported The Haemophilia Society with this work and their work with the APPG investigation through provision of funding via an unrestricted grant.
This survey is about your satisfaction with the treatments you receive for your bleeding disorder and your understanding of the process by which decisions are made on what treatments you are offered and could receive.
When answering the questions please think about the treatment options that are presented to you and your understanding of them. This survey is not about the wider care you may receive on the NHS through your haemophilia centre, such as psychological support or physiotherapy.
We are looking to hear from adults (16+) with any type of bleeding disorder and parents/guardians of children (under 16) with bleeding disorders.
