Introduction

We need your help to set priorities for future research into smell and taste disorders.
 
 
What Do I Need To Do?

We want to hear about your experiences of smell and taste disorders. You can write about anything that is important to you and that you don't know the answer to. We will turn your responses into research questions and check that they haven't already been answered.


What Will Fifth Sense Do With The Results?

This survey is the first step to collect your questions about smell and taste disorders and it will be followed by a second survey to prioritise them. This will help us to decide what research requires funding and we will make sure organisations that fund research will know how important the priorities are. This way, we can ensure that research is relevant to people living with smell and taste disorders.


How will Fifth Sense Use and Store the Information I Provide?

You don't need to provide contact details and if you do, we will keep them separate from your survey answers. You won't be personally identifiable in any analysis of the results. We will keep the information you provide secure. We are only collecting contact details to be able to contact you if you tell us you want to take part in the next phase of the survey and/or if you would like to hear about the survey results. We will not use your details for any other purpose.


Has a Survey Like This Been Done For Other Medical Conditions?

Yes, lots of organisations have done this, here are some example responses people have submitted from other surveys:

"Why do I have problems with my hearing but my brothers and sisters don't?"
"Are breathing exercises beneficial in controlling asthma?"
"What are the most effective ways to prevent depression?"

REMEMBER: These are examples and shouldn't limit your thoughts.
If you have any queries, please do not hesitate to contact us: jla.psp@fifthsense.org.uk

T