Endorse our Patient Charter on access to medicines in Scotland

We’re looking for Genetic Alliance UK members to sign up to endorse our Patient Charter on access to medicines in Scotland. This will add additional weight to the document as we seek to encourage the Scottish Medicines Consortium (SMC) and local health boards to make further improvements based on our recommendations. A large number of endorsements from our members will also raise the volume of our voice as we ask incoming MSPs to act to improve access to treatments for patients with rare diseases in the new Parliament.

Read the Charter here.

About the Patient Charter

The Charter, titled 'Patient perspectives and priorities on access to medicines for rare conditions in Scotland', looks at the impact of the reforms carried out as a result of the 2013 new medicines reviews and Health and Sport Committee inquiry. The Charter finds that:

While the reforms to SMC processes have improved transparency, it is not clear to what extent they have improved patient access to medicines for rare conditions.

There are a number of areas in which improvements can and should be made, particularly relating to the lack of transparency and accountability on the activities of the New Medicines Fund, the proposed transition from Individual Patient Treatment Request to Peer Approved Clinical System, and at the level of the local health board Area Drug and Therapeutics Committees.

Sign up to endorse our Charter below. 

* 1. What is the name of your organisation?

* 2. Tell us your name and job title

* 3. Please provide an email address for us to contact you 

* 4. Tick here if you are happy for us to use a logo that has been provided previously 

If we do not already have a logo for your organisation, or your logo has changed, please send a logo to Louise Coleman at louise.coleman@geneticalliance.org.uk 

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