Section 1: Respondent details

The aim of this survey is to evaluate the pathways by which patients with Alpha-1 Antitrypsin Deficiency (AATD) are diagnosed and managed in different healthcare systems across Europe, and determine the key country-specific decision makers and assess the utilisation of ERN-LUNG in the management of AATD.

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* 1. Name
Results from this survey will be anonymised

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* 2. What is your nationality?

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* 3. Main city of practice

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* 4. What is your affiliation?
(e.g., Department of Pulmonology, University of Medicine, City)

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* 8. How many years' experience do you have as a physician? Tick one

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* 9. How would you describe your current clinical experience of AATD on a scale of 1 to 5 (1 = little to none; 5 = extensive)? Tick one

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* 10. Which option best describes your role in the management of patients with AATD? Tick one

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* 11. Approximately, how many patients with a confirmed diagnosis of severe AATD do you currently have under your care? Tick one

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* 12. In your experience, how long (on average) does it take in your country to obtain a diagnosis of severe AATD from the first onset of symptoms? Tick one

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* 13. Questions 13–15 are related to the referral of patients with suspected AATD 

Approximately, how many patients with suspected AATD have you referred to a respiratory specialist for further diagnosis/treatment? Tick one

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* 14. Approximately, how many of the patients with suspected AATD that were referred to a specialist for further diagnosis/treatment (Question 13) were symptomatic and required treatment with typical chronic obstructive pulmonary disease (COPD) treatments, e.g., inhaled LABA/LAMA, inhaled corticosteroids? Tick one

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* 15. In cases where patients were referred for AATD diagnosis/treatment, but did not require symptomatic treatment with typical COPD treatments, what were the reasons for referral? Tick any

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* 16. Approximately, what percentage of those prescribed symptomatic treatment would receive IV AAT therapy? Tick one

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* 17. What is the distance to your nearest treatment centre? Tick one

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