Thank you for participating in our survey to find out how long it takes to get a diagnosis of endometriosis in the UK, and your experiences during the diagnosis process.

This survey will provide accurate, up to date information about how long the diagnosis process currently takes across the UK, how that has changed over time, and any differences across England, Northern Ireland, Scotland and Wales. We’ll use the information in our lobbying and campaigning work to drive down diagnosis time. For example, the All Party Parliamentary Group on Endometriosis will be launching an enquiry into endometriosis in January 2020, and we will work with the Royal College of GPs and the Royal College of Obstetricians and Gynaecologists to identify improvements in awareness and training for doctors.

When we last collected this data a few years ago, it showed that the average diagnosis time for endometriosis in the UK was a shocking 7.5 years. It is all too easy for decision makers, such as in Parliament or the NHS, to assume that this has improved over time – we want to be able to demonstrate if it has, or if it hasn’t. From those who contact our helpline and support groups, we do hear examples of excellent and prompt diagnosis with symptoms being recognised straight away, whilst others sadly spend many years trying to get a name for their symptoms and suffering.

The survey should take approximately 15 minutes to complete. Responses are completely anonymous, we are not asking for any personal or contact details that can identify you. The survey has been developed in partnership with doctors and university researchers, who will support analysis of the data collected.

If you have any questions about the survey, please contact us - 

Please click ‘Next’ to begin.