PATIENT EXPERIENCE OF CANCER IN EAST & NORTH HERTFORDSHIRE

Your cancer diagnosis experience

By completing this short questionnaire you could help improve cancer care for you and patients like you in east and north Hertfordshire. We are committed to providing the best possible care and experience for our patients and their carers. Your views will be analysed and fed into the relevant organisations providing cancer care in east and north Hertfordshire to ensure we learn from and respond to your experiences.

You can skip any of the questions if you feel they are not appropriate to your experience, but the more you can answer the more helpful your responses will be. Your responses are completely anonymous.

If you have any queries about this questionnaire or would like to request it in an alternative format please call: 01707 685 397 or email: enhertsccg.engagement@nhs.net

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* 1. How long has it been since you were diagnosed with cancer?

Less than six months

Less than one year

Less than two years

Between three and five years

More than five years

Don't know/can't remember

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* 2. How long was it from noticing something might be wrong with you until you first saw a GP or other health care professional?

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* 3. If you saw a GP before going to hospital, was the possibility of cancer discussed, and were you provided with the information you/your family needed?

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* 4. Before you were referred to hospital for cancer, how many times did you see your GP (family doctor) in relation to the health problems caused by this?

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* 5. If you did see a GP, were you informed of the timescales of the cancer pathway, for example the 2 week wait or 62 day target for treatment?

Yes

Don't know/can't remember

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* 6. From when you saw your GP, how long did it take to get a hospital appointment?

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* 7. Which hospital did you attend?

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* 8. As part of your cancer diagnosis did you have any diagnostic test(s), such as an endoscopy, biopsy, mammogram or scan.

Yes

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* 9. How did you feel about the length of time you had to wait for your test to be done?

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* 10. Were the results of any tests undertaken explained in a way you could understand?

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* 11. When you were told you had cancer, how did you feel about the way you were told?

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* 12. When you were diagnosed with cancer, were you given any additional information about the type of cancer you had or where you could find further support?

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* 13. Before your cancer treatment started, were your treatment options explained to you?

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* 14. If you answered 'Yes', what information were you given or where were you signposted to? (eg: given a leaflet, Macmillan Support, Cancer Research UK etc)

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* 15. Did you understand the explanation of what was wrong with you?

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* 16. Were you (and/or your carers) involved as much as you wanted to be in decisions about your care and treatment

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* 17. Did the different people treating and caring for you (such as GP, hospital doctors, hospital nurses, specialist nurses, community nurses) work well together to give you the best possible care?

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* 18. Overall, how would you rate the administration of your care?

	Very poor	Poor	OK	Good	Very good	N/A
Getting letters at the right time	Getting letters at the right time Very poor	Getting letters at the right time Poor	Getting letters at the right time OK	Getting letters at the right time Good	Getting letters at the right time Very good	Getting letters at the right time N/A
Ease of making an appointment	Ease of making an appointment Very poor	Ease of making an appointment Poor	Ease of making an appointment OK	Ease of making an appointment Good	Ease of making an appointment Very good	Ease of making an appointment N/A
Doctors having the right notes	Doctors having the right notes Very poor	Doctors having the right notes Poor	Doctors having the right notes OK	Doctors having the right notes Good	Doctors having the right notes Very good	Doctors having the right notes N/A
Receiving test results	Receiving test results Very poor	Receiving test results Poor	Receiving test results OK	Receiving test results Good	Receiving test results Very good	Receiving test results N/A

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* 19. Please include below any suggestions you have that could have improved your diagnosis of cancer or care provided.

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* 20. Overall, how would you rate the care you have received in relation to your cancer diagnosis and treatment?

0 - Very poor

10 - Very good

Clear

i We adjusted the number you entered based on the slider’s scale.