Dementia Call for Evidence - Black African and Caribbean People In Greater Manchester - Supporting Well

Supporting Well

Thank you for taking time to provide feedback on our Dementia Call for Evidence Survey.

The aim of this survey is to understand the dementia support and information provision to Black African and Caribbean people in Greater Manchester.

Current NHS Ethnicity Data tells us that across England there are only 122 Black African and Caribbean people diagnosed with dementia with only 6 of these people living in Greater Manchester.

ACCG is working with Dementia United to identify the actual number of Black African and Caribbean people across Greater Manchester that have dementia.

We aim to ensure the Care Pathway being developed by Dementia United addresses the cultural needs of Black African and Caribbean people and their carers, living with a diagnosis of dementia and also informs local dementia specialists, health care workers and policy makers.

The Dementia Call for Evidence Survey covers 4 areas of a person’s Dementia journey, which are:

1.     Diagnosing well
2. Supporting well
3.     Living well
4.     Dying well

Questions can be answered by either carers or people living with dementia.

The goal of the Care Pathway/journey is to help Black African and Caribbean people living with dementia, their carers, and people working with them, to understand and navigate the care and support available to them in Greater Manchester.

This Dementia Call for Evidence Survey will help the health and social care system in Greater Manchester to consider the needs of Black African and Caribbean people living with dementia and their carers who are offered care and support, no matter where they live.

ACCG – Dementia – Call for Evidence Survey - Supporting Well

Demographic information:
Dementia does not discriminate, meaning that there are people living with dementia across Manchester from a range of different backgrounds.

However, ACCG together with Dementia United would like to gather views and perspectives specifically from Black African and Caribbean people across the city. We would like to collect some background information from participants.

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* 1. Status

A Carer

Person living with dementia

Mild Cognitive Impairment

Diagnosis (if known)

Other (please specify)

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* 2. How old are you?

18 - 30

31 - 50

51 - 60

61 - 70

71 - 80

80 +

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* 3. Town of Residence

Bolton

Bury

Manchester

Oldham

Rochdale

Salford

Stockport

Tameside

Trafford

Wigan

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* 4. Gender

Male

Female

Intersex

Prefer not to say

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* 5. Ethnicity

Black African

Black Caribbean

Mixed Ethnic Background

Other (please specify)

Supporting Well

LOOKING AFTER OURSELVES AND OUR OWN – DOES NOT MEAN COPING ALONE.

Black African & Caribbean people living with Dementia and memory difficulties and those that care for them are entitled to equal access to the care and support needed to enable them to live well and feel supported.

This section looks specifically at the diagnosis and referral process: We want to ensure people across Greater Manchester are supported to receive a timely diagnosis.

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* 6. Do you know what a care plan is?

Yes

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* 7. Do you have a care plan?

Yes

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* 8. If you have a care plan, has it been useful and support your cultural needs?

Yes

Please comment

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* 9. Do you share your care plan information with others?

Yes

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* 10. Do you know what delirium is and how that might impact on those living with a dementia diagnosis?

Yes

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* 11. Do you have a named service which acts as your first point of contact if you have any questions or need support?

Yes

If yes, have you contacted this service and have you found the information provided useful?

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* 12. Are there any specific aspects of living with dementia you feel you would benefit from more support with? i.e.

attending appointments

linking with social groups

taking part in research

finding appropriate housing

adapting existing housing to changing needs

crisis care and support

Other (please specify)

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* 13. Have you as a carer received training and guidance to support someone with Dementia?

Yes

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* 14. As a carer/family/friend supporting a person with dementia, do you consider your health and welfare needs are being met?

Yes

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* 15. Do you think the services understand or meet your cultural needs?

Yes

If not why?

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* 16. Is it essential that your cultural needs are met by services supporting you (i.e. personal care, diet religious belief)?

Yes

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* 17. Do you feel well supported by family and friends?

Yes

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* 18. Is information provided about dementia straightforward and easy to understand?

Yes

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* 19. Would you like to receive information/advice about?

Services which understand and support my cultural needs

Financial and legal advice

Information on driving safety and planning ahead for independent travel

Information on community support

Advanced plans for when your needs change

slowing/delaying the progression of some forms of dementia (i.e. keeping physically active, reducing alcohol and tobacco intake,
lowering blood pressure and cholesterol)

Other (please specify)

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100% of survey complete.