Living Well

Thank you for taking time to provide feedback on our Dementia Call for Evidence Survey.

The aim of this survey is to understand the dementia support and information provision to Black African and Caribbean people in Greater Manchester.

Current NHS Ethnicity Data tells us that across England there are only 122 Black African and Caribbean people diagnosed with dementia with only 6 of these people living in Greater Manchester.

ACCG is working with Dementia United to identify the actual number of Black African and Caribbean people across Greater Manchester that have dementia.

We aim to ensure the Care Pathway being developed by Dementia United addresses the cultural needs of Black African and Caribbean people and their carers, living with a diagnosis of dementia and also informs local dementia specialists, health care workers and policy makers.

The Dementia Call for Evidence Survey covers 4 areas of a person’s Dementia journey, which are:

1.     Diagnosing well
2.    Supporting well
3.    Living well
4.    End of life care

Questions can be answered by either carers or people living with dementia.

The goal of the Care Pathway/journey is to help Black African and Caribbean people living with dementia, their carers, and people working with them, to understand and navigate the care and support available to them in Greater Manchester. 

This Dementia Call for Evidence Survey will help the health and social care system in Greater Manchester to consider the needs of Black African and Caribbean people living with dementia and their carers who are offered care and support, no matter where they live.
 
ACCG – Dementia – Call for Evidence Survey 
Demographic information:
Dementia does not discriminate, meaning that there are people living with dementia across Manchester from a range of different backgrounds.

However, ACCG together with Dementia United would like to gather views and perspectives specifically from Black African and Caribbean people across the city.  We would like to collect some background information from participants.

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* 1. Status

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* 2. Age:

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* 3. Town of Residence

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* 4. Gender

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* 5. Ethnicity

Living Well

QUALITY OF LIFE INCLUDES EQUALITY IN LIFE – high quality, culturally appropriate care and support is essential to ensure people living with dementia and those that care for them feel included in society and able to live full and active lives as their condition progresses.

This section focuses on the support available to ensure people living with dementia and those that care for them feel included in society and able to live full and active lives as their condition progresses.

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* 6. Do you access services within your community?

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* 7. Have you taken part in any groups or activities aimed at improving your memory and thinking abilities i.e. memory skills groups or cognitive therapies?

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* 8. Do you have experience of an unexpected or emergency hospital stay? – please comment on your experience (i.e. length of stay, care received)

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* 9. Have you experienced challenges in managing emotions or communicating your needs effectively?

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* 10. Do you know how to get advice on how to make adjustments to your home lifestyle?

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* 11. Which of the following are important to you?

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100% of survey complete.

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