End of Life Care 

Thank you for taking time to provide feedback on our Dementia Call for Evidence Survey.

The aim of this survey is to understand the dementia support and information provision to Black African and Caribbean people in Greater Manchester.

Current NHS Ethnicity Data tells us that across England there are only 122 Black African and Caribbean people diagnosed with dementia with only 6 of these people living in Greater Manchester.

ACCG is working with Dementia United to identify the actual number of Black African and Caribbean people across Greater Manchester that have dementia.

We aim to ensure the Care Pathway being developed by Dementia United addresses the cultural needs of Black African and Caribbean people and their carers, living with a diagnosis of dementia and also informs local dementia specialists, health care workers and policy makers.

The Dementia Call for Evidence Survey covers 4 areas of a person’s Dementia journey, which are:

1.     Diagnosing well
2.    Supporting well
3.     Living well
4.     End of Life Care

Questions can be answered by either carers or people living with dementia.

The goal of the Care Pathway/journey is to help Black African and Caribbean people living with dementia, their carers, and people working with them, to understand and navigate the care and support available to them in Greater Manchester. 

This Dementia Call for Evidence Survey will help the health and social care system in Greater Manchester to consider the needs of Black African and Caribbean people living with dementia and their carers who are offered care and support, no matter where they live.
 
ACCG – Dementia – Call for Evidence Survey 
Demographic information:
Dementia does not discriminate, meaning that there are people living with dementia across Manchester from a range of different backgrounds.

However, ACCG together with Dementia United would like to gather views and perspectives specifically from Black African and Caribbean people across the city.  We would like to collect some background information from participants.

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* 1. Status

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* 2. Age:

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* 3. Town of Residence

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* 4. Gender

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* 5. Ethnicity

End of Life Care 

ALL’S WELL THAT ENDS WELL - All people living with dementia should expect their end of life wishes to be met and carers should expect to be supported to maintain their own emotional and physical wellbeing during this time and taking into account their specific cultural needs.

In this survey we are specifically looking at the support available to ensure people living with dementia feel supported to end their lives in accordance with their wishes and that carers also receive the necessary support to help facilitate this and maintain their own emotional and physical wellbeing.

Questions (for Carers):

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* 6. There are a number of symptoms which indicate that someone may be nearing the end of life. Would you be confident in identifying this end of life stage?

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* 7. Have you experienced respite care?

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* 8. Did you receive emotional and physical support when coping with bereavement?

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* 9. Are you informed about legal power of attorney / health power of attorney?

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* 10. Do you feel you received support to meet your cultural needs?

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33% of survey complete.

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