Diagnosing Well

Thank you for taking time to provide feedback on our Dementia Call for Evidence Survey.

The aim of this survey is to understand the dementia support and information provision to Black African and Caribbean people in Greater Manchester.

Current NHS Ethnicity Data tells us that across England there are only 122 Black African and Caribbean people diagnosed with dementia with only 6 of these people living in Greater Manchester.

ACCG is working with Dementia United to identify the actual number of Black African and Caribbean people across Greater Manchester that have dementia.

We aim to ensure the Care Pathway being developed by Dementia United addresses the cultural needs of Black African and Caribbean people and their carers, living with a diagnosis of dementia and also informs local dementia specialists, health care workers and policy makers.

The Dementia Call for Evidence Survey covers 4 areas of a person’s Dementia journey, which are:

1.     Diagnosing well
2.    Supporting well
3.    Living well
4.    End of Life Care 

Questions can be answered by either carers or people living with dementia.

The goal of the Care Pathway/journey is to help Black African and Caribbean people living with dementia, their carers, and people working with them, to understand and navigate the care and support available to them in Greater Manchester. 

This Dementia Call for Evidence Survey will help the health and social care system in Greater Manchester to consider the needs of Black African and Caribbean people living with dementia and their carers who are offered care and support, no matter where they live.
 
ACCG – Dementia – Call for Evidence Survey - Diagnosing Well
Demographic information:
Dementia does not discriminate, the illness affects people from all ethnic backgrounds, but Greater Manchester’s NHS records show hardly any Black African Caribbean people have a diagnosis.

However, ACCG together with Dementia United would like to gather views and perspectives specifically from Black African and Caribbean people across the city.  We would like to collect some background information from participants.

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* 1. Status

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* 2. Age:

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* 3. Town of Residence

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* 4. Gender

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* 5. Ethnicity

Diagnosing Well

This section looks specifically at the diagnosis and referral process: We want to ensure people across Greater Manchester are supported to receive a timely diagnosis.

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* 6. Do you understand the signs of dementia?

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* 7. Were you happy with the time it took to receive a diagnosis and the support you received?

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* 8. What information was given to you when you received a diagnosis?

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* 9. If you received Dementia Information when diagnosed was it helpful? Was anything missing?

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* 10. Are you aware of available medication for this condition?

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* 11. Have you participated in any Dementia research or study?

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* 12. Have you received information about Dementia community support and does it respect your cultural needs?

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* 13. What reasons hinder you or the person you care for receiving a diagnosis of dementia? 

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* 14. If you/someone you know is showing signs of Dementia, do you know what to do?

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* 15. Is Dementia something you talk about with others in your community? 

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* 16. Do you feel able to disclose your Dementia diagnosis to others?

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* 17. If English isn't your first language did this prevent you fully understanding information you received?

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 100% of survey complete.

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