Overview

Being a young person who has special educational needs or disabilities (SEND) whilst at the same time having strengths in academic subjects such as maths or science; or talents in music, the arts or sport; or abilities in areas such as leadership or social skills can sometimes be challenging. In the UK this is described as Dual or Multiple Exceptional (DME). In other countries it may be termed Twice Exceptional (or 2e) or Gifted with Learning Disabilities (or GLD).

If you are or were a young person with DME or have a child with DME, we would like to hear from you. We would like others in a similar situation to benefit from what you have learnt on your journey; your experiences or the knowledge you would pass on to others, knowing what you know now.

If you have never heard of DME please click the link https://www.potentialplusuk.org/index.php/families/dual-or-multiple-exceptionality/ for more information. Please complete this questionnaire if you feel that you or your child could have DME.

Section 1 of this questionnaire is for everyone to complete, to tell us a bit about who you are and your experience of DME.

Section 2 of the questionnaire is for children and young people up to the age of 18  to tell us about your journey so far and your suggestions for other children and young people (and parents, carers, teachers and others) about how you would like to be treated.

Section 3 is for adults with DME  to tell us about what you have learnt over the years and to pass this on, with the ability of hindsight, to other children and young people today.

Section 4 is for parents and carers who have children with DME. We are interested in both the positive and negative things you have faced as your child grew up and what you would pass onto other parents and carers to give them the benefit of what you have learnt. If you have more than one child with DME, you have a choice; you can either complete two or more questionnaires, or pick your experiences with one child and complete the questionnaire like this.

Section 5 gives space for you, if you want to, to write your story about your family's journey or your own.

This questionnaire is totally confidential. We are looking to write a book to support other parents and possibly children and young people now and in the future and stories and quotes may be used in this. We do ask for your email address if you are willing to give it, so that we could contact you for more information or to clarify something, but this is entirely up to you. These email addresses will not be passed onto anyone else and will only be used for this research.

Once you have completed Section 1, it should take about 10 - 15 minutes to fill in each section relevant for you. For example, if you were a child who had DME who is now a parent, after Section 1 you might complete Sections 3 and 4 and this should take 20-30 minutes. Telling your story, if you choose to do so, may take a little longer.

Whatever you choose to do, thank you for taking the time to participate in this important work which we hope will help lots of families in the future.

This survey has been devised by The Potential Trust (charity registration no 326645) in partnership with Potential Plus UK (charity registration no 313182) and a range of other organisations in the UK supporting children and young people with DME.


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