Thank you for taking part in this short but incredibly important survey.

Attitudes in the UK are changing positively towards organ donation in the adult population but we still have a long way to go in improving organ donation rates from children and young people, and in doing so help save the lives of thousands of people awaiting an organ transplant.

In the UK, consent rates for children's organ donation fall well below the national average for the adult population, with less than 50% of families agreeing to their child becoming an organ donor when approached at the end of their child's life.

In 2017/18 when there were over 1500 organ donors, only 39 donors were aged 16 years or younger. This is having a huge negative impact upon children in the UK waiting for a life saving organ transplant where the wait for new heart for example, means waiting 2-3 times longer than an adult.

Legislative changes for organ donation in the UK will most likely have the greatest impact on donation from adults but in March 2019, NHS Blood & Transplant launched it's first ever children's strategy to try and help bridge the gap between the successes seen in adult organ donation in comparison to children.

By taking part in this anonymous survey, your answers will help our understanding of the challenges towards children donating their organs at the end of their lives, and help us to identify possible changes that we can make to improve this situation.

Thank you again

Dr Simon Steel

Paediatric Intensive Care Consultant
Member of the Paediatric National Organ Donation Committee
NHS Blood & Transplant

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* 1. What school age is your child / are your children?

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* 2. Did you already know that you can register a child on the Organ Donor Register from birth?

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* 3. Have you already had a conversation about organ donation as a family?

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* 4. If your child became seriously ill, either as the result of an accident or other medical condition, and it was made clear to you by the doctors looking after them that they would not survive - would you want your child to become an organ donor?

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* 5. If your child came home from school after learning about organ donation and told you that they wanted to be registered as an organ donor - would you support this?

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* 6. Has your school already provided any teaching on organ donation awareness?

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* 7. Should organ donation awareness be taught as part of the national school curriculum?

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* 8. If you answered Yes to the above question, from what school age do you think this would be appropriate?

Thank you for taking the time to complete this survey.
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