Time lost to elective IBD procedures

Bowel & Cancer Research has set up a patient led focus group to find out what matters to patients who have IBD. The group have drawn up this survey as patients spend a lot of time having examinations to help support their disease. But from a patient perspective not much is really known about time lost of undertaking these procedures.   

Please answer every question.

If you are not sure or cannot remember the exact details, please give the best answer you can. The information you provide is completely confidential and non-identifiable. Your answers will be combined with the answers of other participants involved in the survey. Your answers are important to us because they will give those who make decisions about IBD procedures an idea of how much time is lost to you as a patient when you attend for the procedure. The results will be used for research purposes and published in peer reviewed journals and at conferences such as our Big Bowel Event.

If you have a query about this survey please contact Lesley Booth at Bowel & Cancer Research on 02078828749 or email Lesley@bowelcancerresearch.org

Question Title

* 1. If you have a confirmed diagnosis of Inflammatory Bowel Disease (Ulcerative Colitis or Crohn’s disease), and have had at least one of the following in the last 12 months we would like you to take part in our survey:

Question Title

* 2. What is your gender?

Question Title

* 3. What is your date of birth? (DD/MM/YYYY)

Question Title

* 4. Do you have Crohn’s disease, ulcerative colitis or Crohn's colitis?

Question Title

* 5. When was your diagnosis? (DD/MM/YYYY)

Question Title

* 6. Which medicine are you currently receiving for your Crohn’s disease / ulcerative colitis? Please tick all that apply.

Question Title

* 7. Do you think your current medicine is controlling your symptoms?

Question Title

* 8. What is your current employment status?

Question Title

* 9. What would you have been doing as your main activity if you had not been undergoing your most recent procedure?

Question Title

* 10. What cost effect did undergoing this procedure have on your main activity? For example, did you have to pay for childcare cover? Missed leisure activity?

Question Title

* 11. What time effect did undergoing the most recent procedure have on your main activity? (Time lost in hours)

Question Title

* 12. What time effect did recovery post procedure have on your main activity? (Time lost)

Question Title

* 13. In total how long did you spend at the hospital on the day of your last elective procedure before and after the procedure being undertaken (the time spent waiting)? (hours)

Question Title

* 14. Who accompanied you to the procedure?

Question Title

* 15. If you were accompanied, what would your companion have been doing as a main activity if they had not been accompanying you? What time and cost effective did this have on their main activity as your companion?

Question Title

* 16. How long did the journey take to and from the place of your most recent procedure? (hours)

Question Title

* 17. How many miles did you travel to and from the place of your most recent procedure?

Question Title

* 18. How much time did you spend planning ahead/researching travel plans in order to be able to attend your most recent procedure? (hours)

Question Title

* 19. Are you entitled to free or concessionary public transport?

Question Title

* 20. How did you travel from the hospital after the last elective procedure?

Question Title

* 21. How would you describe your current health today?

Worst imaginable health state Best imaginable health state
Clear
i We adjusted the number you entered based on the slider’s scale.

Question Title

* 22. How many of the following have you had in the last six months?

Question Title

* 23. Which best describes the decision making process for the surgery/surgeries you have had?

Thank you for completing the survey.

T