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Sharing patient information – give us your views

Health and care organisations in Dorset are allowed to share information from your health and care records to help them provide you with care and treatment. This includes sharing your records between GPs, hospitals, community and mental health services and social services.

Information about your health and wellbeing is also very useful for the NHS and other health and care services to:

plan the services that people will need in the future
improve health and care services for everybody
develop new cures and treatments
find new ways of preventing people from becoming ill.

Your information is always kept safely and securely, and you cannot be identified from it (except when it is used to provide your individual care).

You can choose not to have information about you shared by registering to opt out.

We want to make sure that people in Dorset understand how their health and care information is shared. We also want you to have trust and confidence that this is being done safely and securely.

To help us do this, we would like to ask you a few questions about:

How you think information from your health and care records is shared now.
How information from your health and care records could be shared in the future.
What would give you trust and confidence in how your information is shared.

We will use the answers to plan how we keep you informed about, and involved in, how your health and care information is shared.

Please complete and submit by 19 August 2022.

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* 1. How do you think information from your health and care records is shared at the moment?

Please tick all the ways that you think it is currently shared:

To provide you with individual care (for example your GP sharing your medical records with the hospital)

To plan and improve health and care services for everybody

To plan new ways of preventing people from becoming ill

To improve care and treatments for people who have the same health conditions

To develop new medicines and treatments

I think there are other ways in which information is shared

I didn’t think my information was shared

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* 2. If there are other ways in which you think your information is shared, please tell us in the space below

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* 3. If you don’t think your information is currently shared, you can give your reasons in the box below

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* 4. Here are some ways in which information from your health and care record could be shared in the future.

Please tell us if you think your information should be shared in each of the following ways (please tick all that apply).

For your individual care

To help plan and improve health and care services for everybody

To plan new ways of preventing people becoming ill

To improve care and treatments for people with the same health condition

Shared with a private hospital or organisation who are providing you with treatment

Shared with an organisation (like the council or a charity) who are providing you with help or support

Shared with charities or universities who are carrying out research into new cures or treatments

Shared with companies who are developing new cures and treatments

None of the above

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* 5. Please tell us if you have any of the following concerns about information from your health and care record being shared? Please tick all those that concern you

I might be identified from my information

My information won’t be kept securely

My information won’t be accurate

My information won’t be kept up to date

I won’t be able to correct my information if it isn’t right

My information might be used to make decisions that do not benefit me (for example cutting services)

My information might be sold

Other (please tell us about these in question 7)

I do not have any concerns

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* 6. If you ticked any of the above concerns and would like to explain why, please use the box below

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* 7. Do you have any other concerns that you would like to tell us about?

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* 8. What would give you trust and confidence in how your information is shared?

Please tick the three things that would give you most trust and confidence.

Understanding how my information is shared

Knowing who can see my information

Knowing what my information is being used for

Knowing that my information is accurate

Knowing that I can’t be identified from the information that is shared (except when it is used for my personal care)

Knowing that my information can only be seen by the people who need to see it

Having the right IT security measures to protect my information

Knowing people are trained in how to share and use information safely and effectively

Knowing that there are regular checks on how my information is being shared

Having a number or email that I can contact if I have any question or concerns

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* 9. Is there anything else that would give you trust and confidence in how your information is shared? If so, please tell us in the space below

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* 10. Where would you prefer to go to find out more about how your Information is shared?
Please tick the three that you would use most

From my GP practice when I visit or contact them

From other health and care professionals when I visit or contact them (for example a nurse or pharmacist)

Information in my GP practice

Information on my GP surgery website

By your GP writing to you

Information on the NHS website

Information when you use NHS apps or e-consult

Information in other places (such as libraries or council offices)

Updates on social media (such as Twitter or Facebook)

From patient representative groups

From community or faith leaders

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* 11. If there are other places where you would go to find out more about how your information is shared, please tell us about them below.

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* 12. Do you have any other comments or thoughts about how your health and care information is shared? If so, please use the box below to tell us.

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* 13. We would like to involve people in planning how we share your information in the future.
Please tell us if you would like to be involved in any of the following ways.

Working with health and care organisations to plan how information is shared, and how it is kept safe and secure

Taking part in future surveys

Taking part in a group discussion (online or in person)

Being kept informed

I don’t want to be involved, thank you

If you answered yes to this question, please provide your details below:

Sharing patient information – give us your views

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* 1. How do you think information from your health and care records is shared at the moment?

Please tick all the ways that you think it is currently shared:

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* 2. If there are other ways in which you think your information is shared, please tell us in the space below

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* 3. If you don’t think your information is currently shared, you can give your reasons in the box below

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* 4. Here are some ways in which information from your health and care record could be shared in the future.

Please tell us if you think your information should be shared in each of the following ways (please tick all that apply).

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* 5. Please tell us if you have any of the following concerns about information from your health and care record being shared? Please tick all those that concern you

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* 6. If you ticked any of the above concerns and would like to explain why, please use the box below

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* 7. Do you have any other concerns that you would like to tell us about?

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* 8. What would give you trust and confidence in how your information is shared?

Please tick the three things that would give you most trust and confidence.

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* 9. Is there anything else that would give you trust and confidence in how your information is shared? If so, please tell us in the space below

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* 10. Where would you prefer to go to find out more about how your Information is shared?
Please tick the three that you would use most

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* 11. If there are other places where you would go to find out more about how your information is shared, please tell us about them below.

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* 12. Do you have any other comments or thoughts about how your health and care information is shared? If so, please use the box below to tell us.

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* 13. We would like to involve people in planning how we share your information in the future.
Please tell us if you would like to be involved in any of the following ways.

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* 14. Name

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* 15. Which area do you live in? (please provide first four letters of post code e.g. BH10)

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* 16. Email address

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* 17. Phone number

Sharing patient information – give us your views

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* 1. How do you think information from your health and care records is shared at the moment? Please tick all the ways that you think it is currently shared:

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* 2. If there are other ways in which you think your information is shared, please tell us in the space below

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* 3. If you don’t think your information is currently shared, you can give your reasons in the box below

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* 4. Here are some ways in which information from your health and care record could be shared in the future.Please tell us if you think your information should be shared in each of the following ways (please tick all that apply).

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* 5. Please tell us if you have any of the following concerns about information from your health and care record being shared? Please tick all those that concern you

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* 6. If you ticked any of the above concerns and would like to explain why, please use the box below

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* 7. Do you have any other concerns that you would like to tell us about?

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* 8. What would give you trust and confidence in how your information is shared?Please tick the three things that would give you most trust and confidence.

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* 9. Is there anything else that would give you trust and confidence in how your information is shared? If so, please tell us in the space below

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* 10. Where would you prefer to go to find out more about how your Information is shared? Please tick the three that you would use most

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* 11. If there are other places where you would go to find out more about how your information is shared, please tell us about them below.

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* 12. Do you have any other comments or thoughts about how your health and care information is shared? If so, please use the box below to tell us.

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* 13. We would like to involve people in planning how we share your information in the future.Please tell us if you would like to be involved in any of the following ways.

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* 14. Name

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* 15. Which area do you live in? (please provide first four letters of post code e.g. BH10)

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* 16. Email address

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* 17. Phone number

* 1. How do you think information from your health and care records is shared at the moment?

Please tick all the ways that you think it is currently shared:

* 4. Here are some ways in which information from your health and care record could be shared in the future.

Please tell us if you think your information should be shared in each of the following ways (please tick all that apply).

* 8. What would give you trust and confidence in how your information is shared?

Please tick the three things that would give you most trust and confidence.

* 10. Where would you prefer to go to find out more about how your Information is shared?
Please tick the three that you would use most

* 13. We would like to involve people in planning how we share your information in the future.
Please tell us if you would like to be involved in any of the following ways.