We know that the coronavirus pandemic has had a big impact on the PH community, and it's important for us to understand which areas of your lives have been affected the most, and what your experiences have been.
It's also vital that we evaluate the support provided by ourselves as a charity and understand your experiences of support from other areas.

By sharing your voice, you will help to shape future support and ensure the experiences of the PH community are heard. When answering these questions, please consider your experiences from the middle of March, when the pandemic started to take hold. 

Your responses will remain anonymous. 

Please only complete this survey if you have pulmonary hypertension and live in the UK.

Thank you for your time. 
ABOUT YOU

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* 1. Are you:

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* 2. What is your current age in years?

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* 3. What type of PH do you have?

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* 4. How many years has it been since your diagnosis of PH?

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* 5. Do you live in:

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* 6. What is your postcode?

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* 7. Which specialist centre are you under?

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* 8. If you are looked after by a satellite clinic, please state its name and location:

THE EMOTIONAL AND PSYCHOLOGICAL IMPACT OF THE PANDEMIC

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* 9. Do you feel your emotional and mental wellbeing has been affected by the pandemic?

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* 10. Do you have any comments relating to the question above? 

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* 11. Over the last 3 months, how anxious have you felt as a direct result of the pandemic?

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* 12. Over the last 3 months, how worried have you felt as a direct result of the pandemic?

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* 13. Over the last 3 months, how panicked have you felt as a direct result of the pandemic?

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* 14. Over the last 3 months, how depressed have you felt as a direct result of the pandemic?

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* 15. Over the last 3 months, how lonely have you felt as a direct result of the pandemic?

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* 16. How much distress has the fear of contracting Covid-19 yourself caused you over the last 3 months?

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* 17. How much distress has the fear of people you love contracting Covid-19 caused you over the last 3 months?

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* 18. How much distress have worries about your PH worsening during the pandemic caused you over the last 3 months?

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* 19. How much distress have worries about your mental health worsening during the pandemic caused you over the last 3 months?

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* 20. How much distress has missing loved ones caused you over the last 3 months?

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* 21. How much distress has feeling lonely caused you over the last 3 months?

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* 22. How much distress has confinement to your home caused you over the last 3 months?

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* 23. How much distress has access to groceries (including supermarket deliveries) caused you over the last 3 months?

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* 24. How much distress has financial concerns (including employment) caused you over the last 3 months?

THE PHYSICAL IMPACT OF THE PANDEMIC

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* 25. Do you feel your physical health has worsened during the pandemic?

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* 26. If you feel your symptoms of PH have worsened, which symptoms have been affected?

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* 27. If you feel your general physical wellbeing has been affected, which elements?

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* 28. Have you experienced symptoms of Covid-19? (A new and persistent cough and / or fever and / or loss of taste or smell)

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* 29. If you experienced symptoms of Covid-19, were you tested?

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* 30. If you were tested, what was the result?

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* 31. If you experienced symptoms of Covid-19, what medical care did you receive? (please tick all that apply) 

THE FINANCIAL IMPACT OF THE PANDEMIC
When answering the next two questions, please consider the impact on your household, not on you as an individual.

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* 32. How has your household income been affected since the middle of March?

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* 33. If your household income has dropped, please state the reasons why (tick all that apply)

SUPPORT DURING THE PANDEMIC

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* 34. Which of the following providers have you been in contact with, or obtained information from, during the pandemic? (Please tick all that apply) 

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* 35. Overall, how would you rate the support provided by your specialist centre during the last 3 months?

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* 36. Did you feel you were able to contact your specialist centre with specific questions or concerns about your PH, unrelated to the pandemic?

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* 37. If you had a telephone or video consultation in place of your face-to-face appointment, how satisfied were you with it?

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* 38. Is there anything else you feel your specialist centre could have done to support you? 

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* 39. Overall, how would you rate the support provided by your GP practice during the last 3 months?

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* 40. Who delivers your medications?

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* 41. If you answered 'other' please state the name of the delivery organisation 

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* 42. Overall, how would you rate the support provided by your medication delivery service during the last 3 months?

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* 43. Overall, how would you rate the support provided by the PHA UK during the last 3 months?

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* 44. How beneficial have you found the information on the PHA UK website? 

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* 45. How beneficial have you found the PHA UK's social media updates and posts? 

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* 46. How beneficial have you found the PHA UK's telephone support (via calling the office)?

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* 47. How beneficial have you found the PHA UK's email support (including via Facebook messages)?

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* 48. How beneficial have you found the information pack sent through the post by the PHA UK at the beginning of April (including the door poster)?

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* 49. How beneficial have you found the PHA UK's infocasts (recorded interviews with healthcare professionals)?

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* 50. How beneficial have you found the PHA UK's adult wellbeing journal and / or children's 'corona chronicle'? 

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* 51. Is there anything else you would like to add, relating to any part of this survey?

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* 52. To help us understand more about the effects of the pandemic on people with PH, we would like to conduct further in-depth research. If you would be happy to be contacted, please provide your name, telephone number and email address below.
Please leave this blank if you would prefer not to be contacted about this.

Thank you for your time. Please click the 'done' button to submit your responses. 

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