Why we need your help?

Chronic obstructive pulmonary disease (COPD) is a very common lung condition.  You may know it as emphysema or chronic bronchitis.
 
COPD is NOT the same as asthma or bronchiectasis.
 
In addition to daily symptoms such as breathlessness and cough, people living with COPD are prone to developing periods when their symptoms get worse. There are many terms for these including ‘chest infections’, ‘flare-ups’, ‘lung attacks’ or ‘exacerbations’. In this survey, we will call them ‘exacerbations’.
 
We are conducting a survey to identify the most important unanswered questions relating to exacerbations of COPD from the point of view of patients, carers and health-care staff.  These questions will then be ordered to help clinicians and researchers address new research into COPD exacerbations and make a real difference to people living with COPD.


Who can get involved in this survey? Please complete this survey if you are:
  • a person with COPD
  • a family member of someone with or who had COPD
  • a carer of someone with or who had COPD
  • a healthcare professional or support worker working with people with COPD

What do we mean by unanswered questions?

An unanswered question is a question which has not been previously examined in medical research or one where existing research has not given a clear enough answer.


Do I have to write a research question and check that it is unanswered?

No. The most important thing is to draw on your personal experience of COPD exacerbations.  It is enough to write a short sentence about something that is important to you, and for which you haven’t been able to find an answer. The team collecting your responses will turn these into questions and check against existing research to find out whether they have indeed been answered or not.

What will happen to my questions?
  • We will collect your survey responses and use them to make a list of priority research ideas.
  • These questions will then go through a process of prioritisation that patients, their relatives and healthcare professionals will be a part of.
  • The questions for which answers are not already available will be published on the JLA and BLF websites anonymously.  This will result in a ‘Top 10’ list of research topics, which we will use to influence the people and organisations who fund future research decisions.

Who is leading this research?


This survey is part of a research study being led by Professor John Hurst, at University College London. The study coordinator is Mr Jaber Alqahtani. This research is funded by the British Lung Foundation, and being run in partnership with the James Lind Alliance, part of the NHS research arm called the NIHR.  If you have any questions or concerns, please do not hesitate to contact us.

Email: Jaber.alqahtani.18@ucl.ac.uk
Want to know more about the study?
 
Check out our website: https://www.blf.org.uk/support-for-you/copd/survey
Follow us on Twitter: @CopdPsp

T