Roy Castle Lung Cancer Foundation - Your views on developing support services

Your view on support needs

Question Title

* 1. What kind of support would you like to have access to?

I would not use a phone support group

I would not use a digital support group

I would use a digital/ online support group (using a plaftorm like zoom or microsoft teams)

I would use a face to face group

I would not attend any form of support group

I would prefer phone or online one to one support

Comment

Question Title

* 2. What are key issues that you would like support on?

Adjusting to a lung cancer diagnosis

Caring for a loved one with lung cancer

Managing during lung cancer treatment

Being treated for mutation driven (EGFR+, ALK+, ROS-1 etc) lung cancer

Communicating with family and friends

Coping at the end of treatment. adjusting to living with lung cancer

Coping with palliative or late stage lung cancer

Recovering from lung cancer surgery

Coming to terms when your lung cancer returns, recurrs or spreads

Other (please specify)

Question Title

* 3. Would you be interested in viewing the following online video content?

Surgeon explaining processes for VATs, and other forms of surgery

Clinician explaining lung cancer screening and the role of lung health checks

Patient who has had surgery discussing preparation and recovery

Clinician explaining why biopsies are tested for genetic driven lung cancer and what treatment is available for them

Clinician explaining role of immunotherapy treatment, benefits and likely response rates

Physiotherapist/ exercise specialist giving demonstration on suitable exercise pre, during and after treatment

Nursing/ palliative professionals advising on caring for someone with end stage lung cancer

Other (please specify)

Question Title

* 4. What would you find useful for video content?

No more than 10 - 15 minutes content

15 - 30 minutes content

30 - 45 minutes content

Opportunity to watch and then join a live discussion

I would not use video content

I would like to see a range of people with lung cancer talk about their experience

Other (please specify)

Question Title

* 5. Would you want to be able to speak to a trained person who has had a similar lung cancer experience to yourself?

Yes, I would use such a service for a one off contact

yes, I would use such a service for ongoing contact

Yes, I would like to be a trained volunteer for such a service

Yes, I would like to use this service as a carer

Yes I would like to be a trained volunteer as a carer for such a service

No this is not a service I would like to use.

Other (please specify)