Welcome to the Cystic Fibrosis Trust survey

This survey is being conducted by the Cystic Fibrosis Trust as part of our Clinical Trials Accelerator Platform programme and we thank you for taking part. Your feedback is valuable and will help us continue to increase access and opportunity to clinical trials for everyone with cystic fibrosis.  

The survey is anonymous - we only ask you to identify your CF centre so that results can be shared with them. This is the fourth year the survey has been conducted.  We will continue to repeat this survey year-on-year to monitor the impact of our work improving access to clinical trial opportunities for people with cystic fibrosis.

Please have a look at the survey – it should take around 15 minutes.  Your responses will be saved as you go so does not have to be completed in one session. 
The following questions relate to clinical trials and/or a research studies:-
  • A clinical trial could involve taking a new type of medication (via a tablet, nebuliser, inhaler) for a certain amount of time to see if it is effective and safe. It could also trial revised use of existing medication (ie: change of dose, targeted use or delivery method), a new physio technique or new medical equipment (eg: nebuliser).
  • A research study may seek to decipher the best CF treatment plan to follow eg: trying out a new form of physiotherapy, revising cystic fibrosis-related diabetes (CFRD) diagnosis/treatment or undertaking a new exercise regime for a certain amount of time to see if it is effective and safe.

    Participation in both of the above types of studies would require you to attend additional study visits to your CF centre to monitor your health and complete questionnaires or a diary as part of the study. For the purposes of this survey, we are not including completion of a one-off questionnaire as participation in a research study or clinical trial.
Please complete the questions about participation only if you have taken part in either a clinical trial or research study.