Can you help please?

This questionnaire is for anyone who has ever been diagnosed and treated for cancer in Shropshire, Telford and Wrekin and Powys. It has been developed by the Living With and Beyond Cancer Programme.

The aim of this questionnaire is to ask people affected by cancer for their views about receiving an end of treatment summary. At the moment not all cancer patients and their GP’s receive Treatment Summaries and there is some variation in how useful these summaries are.

A treatment summary is a document completed by a member of your team within the hospital after a significant phase of your treatment ends. It normally describes the treatment, potential side effects, and signs and symptoms of recurrence. The Treatment Summary aims to inform the GP and other primary care professionals of actions that need to be taken and who to contact with any questions or concerns. You are also offered a copy with the intention of improving your understanding of the treatment you have just received. It will also guide you for anything to look out for during your recovery. The Treatment Summary can also be shared with other health professionals and used to evidence the patient’s treatment, for example when claiming travel insurance.

We hope you can help us by completing this questionnaire to help us make End of Treatment Summaries as useful as possible for patients, GP’s and hospital doctors.

Data Protection

All data processed by the Shrewsbury and Telford NHS Hospital Trust in accordance with the General Data Protection Regulation which provides data protection and privacy for all individuals. This questionnaire is not intended for public use and your details will not be passed on to any third parties as a result of completing this questionnaire. The information we collect will only be used to help us improve End of Treatment Summaries for cancer patients in Shropshire, Telford and Wrekin and Powys.

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* 1. Have you ever heard of the Recovery Package or the Living With and Beyond Cancer Programme?

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* 2. If yes, please say a few words about your understanding

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* 3. Are you aware of who your Clinical Nurse Specialist OR other named keyworker is (or was if you are no longer undergoing treatment)?

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* 4. Have you ever been given a document summarising your treatment after it has completed (known as a Treatment Summary)?

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* 5. IF NO, PLEASE GO DIRECTLY TO QUESTION 8.

If yes, in what format did you receive this summary?

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* 6. If yes, at what point after completing your treatment did you receive this summary?

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* 7. If yes, do you remember if some or all of the information in the summary was relevant and useful?

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* 8. Thinking about the content of an ideal Treatment Summary in the future for you and other people with cancer, what information do you feel should be included?
Please tick the boxes below to show how 'useful' each piece of information would be:

  Extremely useful Very useful Somewhat useful Not so useful Not at all useful Do not wish to answer
Diagnosis
Date of diagnosis
Type of treatment received (with dates)
Any changes to your medication
Alert symptoms to be referred back to the hospital team
Short term toxicities
Long term toxicities
Hospital keyworker contact details
Other service referrals made
GP Actions required once you are home
Summary of the information given to you as a patient and what your knowledge is in regards to future treatment and care
Self-care advice for you as the patient following treatment
Additional information about lifestyle and support needs

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* 9. Can you think of any further suggestions of what should be included in the Treatment Summary?

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* 10. Can you think of any further suggestions of what should not be included in the Treatment Summary?

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* 11. Have you ever found there has been a lack of communication between the hospital and your GP?

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* 12. Have you ever found there has been a lack of communication between your GP and the hospital?

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* 13. If you feel happy to, please give a brief explanation of what you have experienced

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* 14. Do you feel it would be useful to receive a Treatment Summary on completion of your treatment?

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* 15. Can you describe any benefits OR disadvantages of receiving a Treatment Summary after completion of a significant phase of treatment?

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* 16. Do you think your GP should receive a Treatment Summary to keep them updated after completing each treatment?

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* 17. Please feel free to leave any further comments below

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