Cancer Care Reviews: Practice level baseline survey (NH4414-06 CCR 2017)

1. Cancer Care Reviews: Practice level baseline survey for London

As we continue to improve the long term quality of life of people with cancer, we need to ensure everyone with cancer has access to a Cancer Care Review and that primary care professionals are receiving the appropriate information about their patients, at the right time, so that they can manage consequences of cancer and its treatment.

The National Cancer Programme has commissioned Frontline Consultants to create a national baseline of CCR activity to further explore barriers to delivering CCRs in the community.

The outputs of this survey will help to understand variation, target support and plan for continued improvement in the quality of CCRs.

Please note this is not a performance related survey.

This is an extremely important piece of work which will create a consistent baseline across the country. CCGs are encouraged to support this work to ensure a high and accurate response rate to the survey. The baseline will be used nationally and locally, so it is vital that the picture is as robust and detailed as possible. This can only happen with your help.

Please complete the survey to the best of your ability by

09:00am Monday 16th OCTOBER 2017.

For any further questions please contact:
england.tcstlondon@nhs.net

Thank you!!
Transforming Cancer Services Team for London

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* 1. Practice name and CCG

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* 2. The number of patients diagnosed with cancer during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017

Breast

Urology (prostate only)

Urology (excludes prostate)

Lower GI

Upper GI (includes HPB)

Gynaecology

Haematology

Head & Neck

Brain & CNS

Lung

Sarcoma

Skin

Other

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* 3. The total number of Cancer Care Reviews conducted during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017) across all tumour sites

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* 4. The number of patients received at least one Cancer Care Review during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017) across the following tumour sites. Please move onto Question 17 if you cannot break down the number of CCRs conducted in your practice by tumour site.

Breast

Urology (prostate only)

Urology (excludes prostate)

Lower GI

Upper GI (includes HPB)

Gynaecology

Haematology

Head & Neck

Brain & CNS

Lung

Sarcoma

Skin

Other

Question Title

* 5. How many Breast Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

Other (please specify tumour site)

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* 6. How many Urology (prostate only) Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

Question Title

* 7. How many Urology (excluding prostate) Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

Question Title

* 8. How many Lower GI Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 9. How many Gynaecology Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 10. How many Haematology Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 11. How many Head & Neck Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

Question Title

* 12. How many Brain & CNS Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 13. How many Lung Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 14. How many Sarcoma Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 15. How many Skin Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

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* 16. How many Other Cancer Care reviews were:

Undertaken by a GP as part of a standard appointment

Undertaken by a GP as part of an extended appointment

Undertaken by a Practice Nurse within a standard appointment

Undertaken by a Practice Nurse as part of a specialist clinic (e.g. extended appointment by Practice Nurse who received specialist training)

Undertaken by a CNS working in the community alongside GP practice

Don't know

Question Title

* 17. What does the Cancer Care Review involve and when does it take place (check all that apply):

	Breast	Urology (prostate only)	Urology (excluding prostate)	Lower GI	Upper GI (including HPB)	Gynaecology	Haematology	Head & Neck	Brain & CNS	Lung	Sarcoma	Skin	Other
Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Breast	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Urology (prostate only)	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Urology (excluding prostate)	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Lower GI	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Upper GI (including HPB)	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Gynaecology	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Haematology	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Head & Neck	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Brain & CNS	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Lung	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Sarcoma	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Skin	Assessment/reassessment of the person's holistic (clinical and non clinical needs) in light of the cancer, consequence of treatment, current or potential Other
Update care planning as a result of assessment	Update care planning as a result of assessment Breast	Update care planning as a result of assessment Urology (prostate only)	Update care planning as a result of assessment Urology (excluding prostate)	Update care planning as a result of assessment Lower GI	Update care planning as a result of assessment Upper GI (including HPB)	Update care planning as a result of assessment Gynaecology	Update care planning as a result of assessment Haematology	Update care planning as a result of assessment Head & Neck	Update care planning as a result of assessment Brain & CNS	Update care planning as a result of assessment Lung	Update care planning as a result of assessment Sarcoma	Update care planning as a result of assessment Skin	Update care planning as a result of assessment Other
The provision of additional primary care support as required	The provision of additional primary care support as required Breast	The provision of additional primary care support as required Urology (prostate only)	The provision of additional primary care support as required Urology (excluding prostate)	The provision of additional primary care support as required Lower GI	The provision of additional primary care support as required Upper GI (including HPB)	The provision of additional primary care support as required Gynaecology	The provision of additional primary care support as required Haematology	The provision of additional primary care support as required Head & Neck	The provision of additional primary care support as required Brain & CNS	The provision of additional primary care support as required Lung	The provision of additional primary care support as required Sarcoma	The provision of additional primary care support as required Skin	The provision of additional primary care support as required Other
Signposting, navigation, referrals to other sources of information and support and enablement	Signposting, navigation, referrals to other sources of information and support and enablement Breast	Signposting, navigation, referrals to other sources of information and support and enablement Urology (prostate only)	Signposting, navigation, referrals to other sources of information and support and enablement Urology (excluding prostate)	Signposting, navigation, referrals to other sources of information and support and enablement Lower GI	Signposting, navigation, referrals to other sources of information and support and enablement Upper GI (including HPB)	Signposting, navigation, referrals to other sources of information and support and enablement Gynaecology	Signposting, navigation, referrals to other sources of information and support and enablement Haematology	Signposting, navigation, referrals to other sources of information and support and enablement Head & Neck	Signposting, navigation, referrals to other sources of information and support and enablement Brain & CNS	Signposting, navigation, referrals to other sources of information and support and enablement Lung	Signposting, navigation, referrals to other sources of information and support and enablement Sarcoma	Signposting, navigation, referrals to other sources of information and support and enablement Skin	Signposting, navigation, referrals to other sources of information and support and enablement Other
It is offered/provided when the patient presents with changing holistic needs	It is offered/provided when the patient presents with changing holistic needs Breast	It is offered/provided when the patient presents with changing holistic needs Urology (prostate only)	It is offered/provided when the patient presents with changing holistic needs Urology (excluding prostate)	It is offered/provided when the patient presents with changing holistic needs Lower GI	It is offered/provided when the patient presents with changing holistic needs Upper GI (including HPB)	It is offered/provided when the patient presents with changing holistic needs Gynaecology	It is offered/provided when the patient presents with changing holistic needs Haematology	It is offered/provided when the patient presents with changing holistic needs Head & Neck	It is offered/provided when the patient presents with changing holistic needs Brain & CNS	It is offered/provided when the patient presents with changing holistic needs Lung	It is offered/provided when the patient presents with changing holistic needs Sarcoma	It is offered/provided when the patient presents with changing holistic needs Skin	It is offered/provided when the patient presents with changing holistic needs Other
It is offered/provided when the patient asks for it	It is offered/provided when the patient asks for it Breast	It is offered/provided when the patient asks for it Urology (prostate only)	It is offered/provided when the patient asks for it Urology (excluding prostate)	It is offered/provided when the patient asks for it Lower GI	It is offered/provided when the patient asks for it Upper GI (including HPB)	It is offered/provided when the patient asks for it Gynaecology	It is offered/provided when the patient asks for it Haematology	It is offered/provided when the patient asks for it Head & Neck	It is offered/provided when the patient asks for it Brain & CNS	It is offered/provided when the patient asks for it Lung	It is offered/provided when the patient asks for it Sarcoma	It is offered/provided when the patient asks for it Skin	It is offered/provided when the patient asks for it Other
It is offered/provided at scheduled defined intervals	It is offered/provided at scheduled defined intervals Breast	It is offered/provided at scheduled defined intervals Urology (prostate only)	It is offered/provided at scheduled defined intervals Urology (excluding prostate)	It is offered/provided at scheduled defined intervals Lower GI	It is offered/provided at scheduled defined intervals Upper GI (including HPB)	It is offered/provided at scheduled defined intervals Gynaecology	It is offered/provided at scheduled defined intervals Haematology	It is offered/provided at scheduled defined intervals Head & Neck	It is offered/provided at scheduled defined intervals Brain & CNS	It is offered/provided at scheduled defined intervals Lung	It is offered/provided at scheduled defined intervals Sarcoma	It is offered/provided at scheduled defined intervals Skin	It is offered/provided at scheduled defined intervals Other

Question Title

* 18. Holistic Needs Assessments and Care Plans

	Do not receive Holistic Needs Assessments/Care plans and Treatment Summaries	Breast	Urology (prostate only)	Urology (excluding prostate)	Lower GI	Upper GI (including HPB)	Gynaecology	Haematology	Head & Neck	Brain & CNS	Lung	Sarcoma	Skin	Other
Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate)	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Do not receive Holistic Needs Assessments/Care plans and Treatment Summaries	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Breast	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Urology (prostate only)	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Urology (excluding prostate)	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Lower GI	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Upper GI (including HPB)	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Gynaecology	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Haematology	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Head & Neck	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Brain & CNS	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Lung	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Sarcoma	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Skin	Holistic Needs Assessments/Care plans and Treatment Summaries are reliably received from secondary care (check where appropriate) Other
Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Do not receive Holistic Needs Assessments/Care plans and Treatment Summaries	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Breast	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Urology (prostate only)	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Urology (excluding prostate)	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Lower GI	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Upper GI (including HPB)	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Gynaecology	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Haematology	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Head & Neck	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Brain & CNS	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Lung	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Sarcoma	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Skin	Holistic Needs Assessments/Care Plans and Treatment Summaries from secondary care provide the necessary information to inform a holistic CCR Other

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* 19. Where is Cancer Care Review data recorded (within your practice system)?

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* 20. Does your CCG actively commission the delivery of CCRs through initiatives such as local incentive schemes or QOF?

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* 21. What template do you use when conducting CCRs?

QOF CCR template

Macmillan CCR template

Local practice developed template

CCG developed template

Don't know

Other (please specify)

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* 1. Practice name and CCG

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* 2. The number of patients diagnosed with cancer during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017

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* 3. The total number of Cancer Care Reviews conducted during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017) across all tumour sites

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* 4. The number of patients received at least one Cancer Care Review during 2016/2017 Quarter 4 (1st January 2017 - 31st March 2017) across the following tumour sites. Please move onto Question 17 if you cannot break down the number of CCRs conducted in your practice by tumour site.

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* 5. How many Breast Cancer Care reviews were:

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* 6. How many Urology (prostate only) Cancer Care reviews were:

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* 7. How many Urology (excluding prostate) Cancer Care reviews were:

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* 8. How many Lower GI Cancer Care reviews were:

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* 9. How many Gynaecology Cancer Care reviews were:

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* 10. How many Haematology Cancer Care reviews were:

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* 11. How many Head & Neck Cancer Care reviews were:

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* 12. How many Brain & CNS Cancer Care reviews were:

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* 13. How many Lung Cancer Care reviews were:

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* 14. How many Sarcoma Cancer Care reviews were:

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* 15. How many Skin Cancer Care reviews were:

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* 16. How many Other Cancer Care reviews were:

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* 17. What does the Cancer Care Review involve and when does it take place (check all that apply):

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* 18. Holistic Needs Assessments and Care Plans

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* 19. Where is Cancer Care Review data recorded (within your practice system)?

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* 20. Does your CCG actively commission the delivery of CCRs through initiatives such as local incentive schemes or QOF?

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* 21. What template do you use when conducting CCRs?

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* 22. Are you aware of the 4 Point model that was developed to help deliver holistic CCRs?

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* 23. What are the challenges involved in collecting data on CCR and how have you overcome this?

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* 24. Have you taken any steps to ensure consistency and robustness of CCR data collection? If yes, please provide brief details.

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* 25. Do you have any examples of how you have used CCR data to inform improvements in care/service delivery?

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* 26. Do you have any outcome measures used to evidence/monitor/measure impact and/or benefits related to CCRs?

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* 27. Do you have any examples of what worked well in piloting or implementing CCRs?

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* 28. Barriers to implementing CCRs and how have they been over come?