State of Caring Survey 2020

Last year, over 8,000 current and former carers shared their experience of caring. This allowed us to highlight the impact of being a carer to the media, in dozens of evidence submissions to Government and Parliamentary consultations, and in reports that influence decision makers and policy makers in a wide range of areas, including in the run up to the General Election.

Building on evidence from previous years, your experience of working while caring from our 2019 survey was included in our response to the Government Good Work Plan consultation, making the case for employers to provide more support for carers. As a result, the Government has committed to consulting on the introduction of Care Leave for working carers. Your responses have also enabled us to provide comprehensive evidence as part of our ongoing work with Sport England to investigate the barriers carers face in taking part in physical activity.

In the survey we’ll be asking you to tell us what life is like now, and what needs to change.

This is the most extensive survey into carers' experiences in the UK. As a result, it will take at least 20 - 30 minutes to complete - so grab a cuppa and get comfy!

Please note that this survey is only for unpaid carers (or former carers) who are looking after a disabled, older or seriously ill relative or friend.

We realise that carers are busy. You are able to skip most questions in the survey. If you don't have much time, then answering the questions with the tick boxes is very much appreciated. However, the more information you give to us, the better we can build a comprehensive picture of how caring affects different people. We are really keen to hear about your experiences – good or bad – in as much detail as possible as this helps us paint a picture of what it is like to be a carer in 2020; so if you have more time, please use the comment boxes.
Any comments you provide would not be identified as yours unless you give us permission to contact you and we get agreement from you to do so. Your details will never be passed on to a third party.

We are so grateful to each and every person who takes the time to complete the survey and give us a full picture of their caring experience. We will publish the top-line results in our State of Caring Report in the summer.