The Patients Association wants to find out how patients, people with long term conditions and others are experiencing their treatment and care during the COVID-19 global pandemic. We want to collect your views and experiences so that we can use them to influence decision makers, such as government, local services and others, during and after this crisis.

You can use this survey to tell us about your own experiences, or you can complete it on behalf of someone you care for.

This survey has four sections:
  1. How are you finding managing and accessing care for existing health condition(s)?
  2. How have you found treatment and care if you have had COVID-19?
  3. How has your experience of health and care services been overall?
  4. If you have recently been bereaved, what has been your experience of care before and after the person’s death? You will be asked first if this section is relevant to you and if you are willing to complete it. If you are not ready to answer these questions, you can skip this section.
You do not have to fill in every section if they are not relevant to you or if you do not want to. Please share as much as you feel comfortable with. We may use what you tell us, including quotes, in reports, blogs and other written materials as part of our policy and campaigning work. All quotes will be anonymous, and no identifying or personal data will be shared.

We think the survey should take around 17 minutes to complete.

If you have any questions about the survey, or would like the option to complete the survey over the phone, please contact us at, leaving your name and number.

If you are having trouble accessing health and care services and would like advice, you can contact the Patients Association helpline on 0800 345 7115 or at You can find information about the helpline here:

You can find more advice and guidance from the Patients Association on Coronavirus here:

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* 1. Please confirm that you are happy for the Patients Association to use quotes from your responses, anonymously and without any identifying data, in future work.

Demographics and context questions

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* 2. What age group do you fall under?

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* 3. What is your ethnicity?

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* 4. What is your gender?

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* 5. Where do you live?

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* 6. Which of the following options best describes your sexual orientation?

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* 7. Do you or the person you care for have a pre-existing condition(s) or disability that you were receiving treatment for, or in the process of diagnosing, before the COVID-19 pandemic?

14% of survey complete.