British Heart Foundation Data Science Centre Trusted Research Environment: Vanguard Cohort Linkage

Section one

We would appreciate if you could take a few minutes to answer this short questionnaire to ensure we have captured accurate and up-to-date information on your cohort.

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* 1. Name of your cohort study.

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* 2. Please provide a brief description of your cohort.

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* 3. Name and email address of your cohort PI.

Name

Email Address

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* 4. Name and email address of your primary liaison contact.

Name

Email Address

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* 5. Please provide your website details (if one is available).

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* 6. Please check below the phase your cohort is currently in.

In set up

Recruiting

In recruitment

Other (please specify)

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* 7. What is the size of your cohort? e.g. 8000 and looking to recruit 15000

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* 8. Which countries are you recruiting from?

England

Scotland

Wales

Northern Ireland

Other (please specify)

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* 9. Do you have ethical approval for your cohort such as REC or HRA - NHS? Please provide further information if necessary.

Yes

Other (please specify)

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* 10. Do you have informed consent from cohort participants to link their data to routinely collected NHS data? Please provide further information if necessary.

Yes

Other (please specify)

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* 11. If your study is complete, would you be looking to upload a complete dataset?

Yes

Other (please specify)

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* 12. Please check all study data types your cohort collects and you would be looking to upload to the TRE for linkage. Please provide further information if necessary.

Clinical data

Blood inventory data

Demographic data

Imaging data

Pathological data

Personal monitoring data

Radiological data

Other (please specify)

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* 13. Do you plan to upload data from blood output samples?

Yes