Patient Feedback What were the main health problems or symptoms which made you attend your GP Question Title * 1. What were the main health problems or symptoms which made you attend your GP Painless lump Painful Lump Lump increasing in size Something else Other (please specify) How long was it from the time you noticed these symptoms before you attended your GP or A&E Question Title * 2. How long was it from the time you noticed these symptoms before you attended your GP or A&E Less than a month Less than 3 Months More than 3 months After your first attendance at either your Doctor or A&E were you initially treated for your condition or treated for something else Question Title * 3. After your first attendance at either your Doctor or A&E were you initially treated for your condition or treated for something else Treated for my condition Treated for something else Were you told by your GP or A&E that you were being treated for a soft tissue sarcoma Question Title * 4. Were you told by your GP or A&E that you were being treated for a soft tissue sarcoma Yes No Other (please specify) How long was it before either your GP or another doctor referred you to hospital for further investigation Question Title * 5. How long was it before either your GP or another doctor referred you to hospital for further investigation Within 2 weeks Within 1 month Longer How much longer Other (please specify) Were you initially referred to a specialist sarcoma or GIST clinic or some other department Question Title * 6. Were you initially referred to a specialist sarcoma or GIST clinic or some other department Specialist Sarcoma or GIST Clinic Other Department Which Department Other (please specify) When you were first diagnosed were you told that you had Question Title * 7. When you were first diagnosed were you told that you had Primary GIST Primary and secondary/metastatic GIST don't know Following diagnosis for GIST were you given the name of a nurse to contact if you had worries or concerns Question Title * 8. Following diagnosis for GIST were you given the name of a nurse to contact if you had worries or concerns Yes No Was your designated nurse a Clinical Nurse Specialist Question Title * 9. Was your designated nurse a Clinical Nurse Specialist Yes No Don't know After your diagnosis were you given a treatment plan Question Title * 10. After your diagnosis were you given a treatment plan Yes No Don't know Did you have surgery as the first part of your treatment Question Title * 11. Did you have surgery as the first part of your treatment Yes No Did you have drug treatment before surgery to downsize the tumour and make it possible for surgery Question Title * 12. Did you have drug treatment before surgery to downsize the tumour and make it possible for surgery Yes No Following surgery did you receive adjuvant treatment (drugs to kill off any remaining tumour) Question Title * 13. Following surgery did you receive adjuvant treatment (drugs to kill off any remaining tumour) Yes No How long have you been treated with any of the following drugs Question Title * 14. How long have you been treated with any of the following drugs imatinib sunitinib regorafenib Years and months What have been the main side effects Question Title * 15. What have been the main side effects Please describe them Please describe them Did you have support from either your nurse or doctor in managing the side effects Question Title * 16. Did you have support from either your nurse or doctor in managing the side effects Yes No Some Please provide background information about yourself which will remain anonymous Question Title * 17. Please provide background information about yourself which will remain anonymous Male Female Age Question Title * 18. Age 10-25 25-45 45-65 over 65 Did you have a second opinion at another hospital after you were diagnosed Question Title * 19. Did you have a second opinion at another hospital after you were diagnosed Yes No How many different hospitals have you attended for your diagnosis and treatment Question Title * 20. How many different hospitals have you attended for your diagnosis and treatment 1 2 3 or more Do you believe you were treated in a specialist centre i.e. a hospital with a specialist department for treating GIST patients Question Title * 21. Do you believe you were treated in a specialist centre i.e. a hospital with a specialist department for treating GIST patients Yes No Don't know Please let us know the name of the hospital in which you are being treated Question Title * 22. Please let us know the name of the hospital in which you are being treated Hospital name Name of Hospital Please describe how your diagnosis or treatment could have been better Question Title * 23. Please describe how your diagnosis or treatment could have been better Describe Please describe How did you first hear of GIST Support UK Question Title * 24. How did you first hear of GIST Support UK From a Healthcare Professional via the internet Facebook Other (please specify) Have you received any literature or information which is published by GIST Support UK Question Title * 25. Have you received any literature or information which is published by GIST Support UK Yes No Please let us know of anything you think might be of use to GIST patients and carers which we can do Question Title * 26. Please let us know of anything you think might be of use to GIST patients and carers which we can do Describe Comment Done