* 1. What were the main health problems or symptoms which made you attend your GP

* 2. How long was it from the time you noticed these symptoms before you attended your GP or A&E

* 3. After your first attendance at either your Doctor or A&E were you initially treated for your condition or treated for something else

* 4. Were you told by your GP or A&E that you were being treated for a soft tissue sarcoma

* 5. How long was it before either your GP or another doctor referred you to hospital for further investigation

* 6. Were you initially referred to a specialist sarcoma or GIST clinic or some other department

* 7. When you were first diagnosed were you told that you had

* 8. Following diagnosis for GIST were you given the name of a nurse to contact if you had worries or concerns

* 9. Was your designated nurse a Clinical Nurse Specialist

* 10. After your diagnosis were you given a treatment plan

* 11. Did you have surgery as the first part of your treatment

* 12. Did you have drug treatment before surgery to downsize the tumour and make it possible for surgery

* 13. Following surgery did you receive adjuvant treatment (drugs to kill off any remaining tumour)

* 14. How long have you been treated with any of the following drugs

* 15. What have been the main side effects

* 16. Did you have support from either your nurse or doctor in managing the side effects

* 17. Please provide background information about yourself which will remain anonymous

* 18. Age

* 19. Did you have a second opinion at another hospital after you were diagnosed

* 20. How many different hospitals have you attended for your diagnosis and treatment

* 21. Do you believe you were treated in a specialist centre i.e. a hospital with a specialist department for treating GIST patients

* 22. Please let us know the name of the hospital in which you are being treated

* 23. Please describe how your diagnosis or treatment could have been better

* 24. How did you first hear of GIST Support UK

* 25. Have you received  any literature or information which is published by GIST Support UK

* 26. Please let us know of anything you think might be of use to GIST patients and carers which we can do

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