What were the main health problems or symptoms which made you attend your GP

Question Title

* 1. What were the main health problems or symptoms which made you attend your GP

How long was it from the time you noticed these symptoms before you attended your GP or A&E

Question Title

* 2. How long was it from the time you noticed these symptoms before you attended your GP or A&E

After your first attendance at either your Doctor or A&E were you initially treated for your condition or treated for something else

Question Title

* 3. After your first attendance at either your Doctor or A&E were you initially treated for your condition or treated for something else

Were you told by your GP or A&E that you were being treated for a soft tissue sarcoma

Question Title

* 4. Were you told by your GP or A&E that you were being treated for a soft tissue sarcoma

How long was it before either your GP or another doctor referred you to hospital for further investigation

Question Title

* 5. How long was it before either your GP or another doctor referred you to hospital for further investigation

Were you initially referred to a specialist sarcoma or GIST clinic or some other department

Question Title

* 6. Were you initially referred to a specialist sarcoma or GIST clinic or some other department

When you were first diagnosed were you told that you had

Question Title

* 7. When you were first diagnosed were you told that you had

Following diagnosis for GIST were you given the name of a nurse to contact if you had worries or concerns

Question Title

* 8. Following diagnosis for GIST were you given the name of a nurse to contact if you had worries or concerns

Was your designated nurse a Clinical Nurse Specialist

Question Title

* 9. Was your designated nurse a Clinical Nurse Specialist

After your diagnosis were you given a treatment plan

Question Title

* 10. After your diagnosis were you given a treatment plan

Did you have surgery as the first part of your treatment

Question Title

* 11. Did you have surgery as the first part of your treatment

Did you have drug treatment before surgery to downsize the tumour and make it possible for surgery

Question Title

* 12. Did you have drug treatment before surgery to downsize the tumour and make it possible for surgery

Following surgery did you receive adjuvant treatment (drugs to kill off any remaining tumour)

Question Title

* 13. Following surgery did you receive adjuvant treatment (drugs to kill off any remaining tumour)

How long have you been treated with any of the following drugs

Question Title

* 14. How long have you been treated with any of the following drugs

What have been the main side effects

Question Title

* 15. What have been the main side effects

Did you have support from either your nurse or doctor in managing the side effects

Question Title

* 16. Did you have support from either your nurse or doctor in managing the side effects

Please provide background information about yourself which will remain anonymous

Question Title

* 17. Please provide background information about yourself which will remain anonymous

Age

Question Title

* 18. Age

Did you have a second opinion at another hospital after you were diagnosed

Question Title

* 19. Did you have a second opinion at another hospital after you were diagnosed

How many different hospitals have you attended for your diagnosis and treatment

Question Title

* 20. How many different hospitals have you attended for your diagnosis and treatment

Do you believe you were treated in a specialist centre i.e. a hospital with a specialist department for treating GIST patients

Question Title

* 21. Do you believe you were treated in a specialist centre i.e. a hospital with a specialist department for treating GIST patients

Please let us know the name of the hospital in which you are being treated

Question Title

* 22. Please let us know the name of the hospital in which you are being treated

Please describe how your diagnosis or treatment could have been better

Question Title

* 23. Please describe how your diagnosis or treatment could have been better

How did you first hear of GIST Support UK

Question Title

* 24. How did you first hear of GIST Support UK

Have you received  any literature or information which is published by GIST Support UK

Question Title

* 25. Have you received  any literature or information which is published by GIST Support UK

Please let us know of anything you think might be of use to GIST patients and carers which we can do

Question Title

* 26. Please let us know of anything you think might be of use to GIST patients and carers which we can do

T