1. Introduction.

Thank you for taking the time to respond to the Action for Pulmonary Fibrosis Patient Survey.

Our 2018 survey aims to assess whether the care and treatment of IPF patients has improved since our last survey in 2015 and to identify where greater effort is needed by the NHS.  We also want to understand how changes in the NHS, over the last three years, have impacted on people living with pulmonary fibrosis and how the needs of the IPF community are evolving.

Responses will be analysed and a report published setting out a series of recommendations for healthcare leaders and policymakers.  As was the case in 2015, we hope to raise awareness of the issues facing people living with IPF and to help to improve the care the NHS provides.

The survey should be completed by IPF patients or somebody acting on their behalf who is their main carer.  The survey can also be filled in for patients who have passed away from IPF on or after 1st July 2017 by the individual who was their main carer. All responses are completely anonymous and confidential so please do not provide any personal information in the box at the end of the survey.

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