Rationale for this survey


At the moment, doctors recommend that people continue biologic treatment for their psoriasis, even when their skin is completely clear.

We know from clinical trials that some of these individuals may be able to stop treatment for a while, and then restart if / when the psoriasis begins to come back. 

If people only take a drug when they need it this could reduce risks and burden to patients and save the NHS money.

Our research therefore aims to find out whether biologic treatments can be taken ‘as required’ in routine care whilst still maintaining complete control of psoriasis.

We would like your help in designing this research to make sure we consider everything that is important to people with psoriasis.

This questionnaire will take around 5 minutes to complete.

  

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* 1. How strongly do you agree or disagree with the following statement:

I think it is important to find out if biologic treatments can be taken ‘as required’ whilst still maintaining complete control of psoriasis.

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* 2. How strongly do you agree or disagree with the following statement:

Taking a regular biologic treatment for my psoriasis continuously long-term concerns me.

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* 3. The factors that most concern me about taking a regular biologic treatment continuously long-term are (tick all that apply):

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* 4. How strongly do you agree or disagree with the following statement:

In the past, I have stopped my biologic medication for a period of time (when my skin was well controlled) without my psoriasis flaring:

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* 5. How strongly do you agree or disagree with the following statement:

In the past, I stopped my biologic medication (when my skin was well controlled) for the following period of time without my psoriasis flaring:

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* 6. In the past, I stopped my biologic medication for a period of time (when my skin was well controlled) because (tick all that apply):

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* 7. ‘As required’ dosing means taking your biologic injection only at the first sign of your psoriasis returning (and not when your skin is clear).

If my skin was clear on treatment, I would be happy to start taking my biologic medication ‘as required’:

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* 8. If my psoriasis recurred, I would want to re-start my biologic medication when I had:

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* 9. If my psoriasis recurred, I would want to be seen by a doctor or nurse to re-start my biologic medication within:

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* 10. Do you have any concerns about this treatment strategy?

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* 11. In this study, we will ask participants to provide regular information on their health using their smartphone (e.g. via an app), which is checked by a doctor/nurse. This will include taking photos of their psoriasis on select body sites, for secure and confidential transfer to the healthcare team.

Do you have a smartphone?

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* 12. I am willing to provide information on my health including my psoriasis using my smartphone (e.g. via an app) for monitoring by my doctor/nurse:

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* 13. How often would you be willing to provide information on your health using your smartphone (e.g. via an app) for monitoring by your doctor/nurse?

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* 14. I am willing to take photos of my psoriasis using my smartphone (e.g. via an app) for review by my doctor/nurse:

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* 15. Is there anything about this study that that you think could be improved or changed?

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* 16. In theory, would you be prepared to take part of this study:

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* 17. We will be running a virtual focus group in June to discuss this project further and ask for your feedback. Please leave your contact details below if you are happy for the research team to invite you to the focus group (please note this is not a commitment, simply a registering of interest).

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* 18. If you might be interested in working with the research team as a patient representative to help design and deliver this study, please leave your details below so that the research team can contact you (please note this is not a commitment, simply a registering of interest).

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* 19. I am

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* 20. My age

0 of 20 answered
 

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