PATIENT INFORMATION - please tick the consent box at the bottom of this information to proceed to the survey questions
Dear Participant,
We would like to invite you to participate in this research project. Before you decide whether you want to take part, it is important for you to understand why the research is being done and what your participation will involve. Please take time to read the following information carefully and discuss it with others if you wish. Ask us if there is anything that is not clear or if you would like more information (contact details below).
What is the purpose of the project? The purpose of the project is to find out about what the impact of Covid-19 is on bladder cancer patients and their care. Your responses will also help us learn what the longer-term implications of the pandemic might be.
Why am I being invited to take part? You are eligible to participate in this project because you are someone who is over 18, lives in the UK, and has previously received a diagnosis of bladder cancer.
What will happen if I take part? If you choose to take part in the project you will be asked to complete a short online survey, consisting of a mixture of multiple choice questions and free-text questions, which will take around 15 minutes in total. If there are any questions you don’t wish to answer you can just leave them blank. Once you have completed the survey, you won’t be asked to do anything else. The survey is online and you will be directed to the survey at the bottom of this page. You will be asked to provide some information regarding your diagnosis and treatment, and how these may or may not have been impacted by the Covid-19 pandemic.
Do I have to take part? No, participation is completely voluntary. You should only take part if you want to and choosing not to take part will not disadvantage you in any way. Once you have read the information sheet, please contact us if you have any questions that will help you make a decision about taking part. If you decide to take part we will ask you to tick the box below to confirm that you have read this information and consent to take part.
What are the possible risks of taking part? There are no significant risks to you by taking part in this survey.
What are the possible benefits of taking part? There are no intended benefits to you personally from taking part. The data you provide will contribute toward better care for bladder cancer patients.
Data handling and confidentiality: Your data will be processed in accordance with the General Data Protection Regulation 2018 (GDPR). All study responses are fully anonymous, meaning you will not be able to be identified. The data controller for this project is King’s College London. Your anonymised data will be stored at King’s College London for 1 year, in accordance with King’s College London’s Records and Data Retention Schedule. Please do not record any personal identifiable information (such as your name) in the free-text boxes. This is to protect your confidentiality.
Data Protection Statement: Your data will be processed in accordance with the General Data Protection Regulation 2018 (GDPR). If you would like more information about how your data will be processed in accordance with GDPR please visit the link below:
https://www.kcl.ac.uk/research/support/research-ethics/kings-college-london-statement-on-use-of-personal-data-in-research
What if I change my mind about taking part? You are free withdraw at any point of the project. You can withdraw by simply exiting the web browser you are using. Withdrawing from the project will not affect y
