LUPUS UK Supporter Survey

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* 1. How old are you?

18 to 24

25 to 34

35 to 44

45 to 54

55 to 64

65 to 74

75 and older

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* 2. What is your gender ?

Male

Female

Non-binary

Prefer not to disclose

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* 3. What is your ethnicity?

White - English/Welsh/Scottish/Northern Irish/British

White - Irish

White - Gypsy or Irish Traveller

Any other White background (please state in comment)

White and Black Caribbean

White and Black African

White and Asian

Any other Mixed/multiple ethnic background (please state in comment)

Indian

Pakistani

Bangladeshi

Chinese

Any other Asian background (please state in comment)

African

Caribbean

Any other Black/African/Caribbean background (please state in comment)

Arab

Any other ethnic group (please state in comment)

Prefer not to say

Comment

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* 4. Which statement best describes you?

I have a diagnosis of lupus (SLE, cutaneous lupus or drug-induced lupus).

I am currently being tested for lupus and/or under investigation.

I have a diagnosis of an associated autoimmune disease (i.e. Sjögren’s syndrome, Undifferentiated/Mixed Connective Tissue Disease, Vasculitis, Rheumatoid Arthritis etc.)

I have/had a family member and/or friend with a diagnosis of lupus

I am a healthcare professional.

None of the above.

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* 5. Which of the following LUPUS UK services have you ever used? (please check all that apply)

I have engaged with LUPUS UK through social media (Facebook, Twitter, Instagram or LinkedIn).

I am part of the online community forum on HealthUnlocked.

I have called the LUPUS UK Helpline or used the online contact form.

I have attended a support group meeting (face-to-face or virtual).

I have called a volunteer telephone contact to chat.

I have attended a Lupus Information Day with expert speakers.

I have watched a virtual seminar.

I have read information on the website and/or in printed leaflets and booklets

I have participated in a LUPUS UK organised fundraising event (i.e., The London World Lupus Day Sponsored Walk).

I have ordered promotional materials to raise awareness of lupus in my local community.

None of the above.

Comments

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* 6. Are you a member of LUPUS UK?

I am currently a paid member

I used to be a paid member but my subscription lapsed

I have never been a paid member

If you are not a member of LUPUS UK, please share your reason:

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* 7. Have you ever supported LUPUS UK in any of the following ways (please check all that apply);

I’ve donated to the charity

I’ve taken part in/organised a fundraising/sponsored event for the charity

I’ve volunteered with my local support group to help organise events, awareness stands, meetings etc.

I’ve been a trained volunteer telephone contact for the charity.

I’ve taken part in surveys/research studies/clinical trials that I learned about from LUPUS UK.

I’ve displayed LUPUS UK promotional materials in my local community, workplace etc. to raise awareness of lupus.

I’ve shared information about LUPUS UK online (using social media, email, WhatsApp etc.)

I’ve cheered on fundraisers for LUPUS UK at an organised event.

I’ve taken part in a media interview to share my story about lupus and raise awareness.

I’ve ordered items from the LUPUS UK shop.

Other (please specify in the comments).

None of the above.

Comments

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* 8. Which services offered by LUPUS UK do you think are the most important? (Please rank the options in order, where 1 in the most important)

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* 9. Are there any services not currently offered by LUPUS UK that you feel we should be providing?

Yes (please specify in comments)

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* 10. How do you think awareness about lupus and the impact of living with the disease is changing?

I think that awareness of lupus is increasing

I have not noticed any change in the general awareness of lupus

I think that fewer people are aware of lupus

Comments

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* 11. Is there anything you think LUPUS UK could be doing more of, or differently, to improve awareness of lupus?

Yes (please specify in comments)

Comments

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* 12. Do you think that the annual Lupus Awareness Month (October) campaign is making a difference?

Yes

I’m not sure

Comments

LUPUS UK Supporter Survey

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* 1. How old are you?

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* 2. What is your gender ?

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* 3. What is your ethnicity?

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* 4. Which statement best describes you?

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* 5. Which of the following LUPUS UK services have you ever used? (please check all that apply)

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* 6. Are you a member of LUPUS UK?

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* 7. Have you ever supported LUPUS UK in any of the following ways (please check all that apply);

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* 8. Which services offered by LUPUS UK do you think are the most important? (Please rank the options in order, where 1 in the most important)

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* 9. Are there any services not currently offered by LUPUS UK that you feel we should be providing?

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* 10. How do you think awareness about lupus and the impact of living with the disease is changing?

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* 11. Is there anything you think LUPUS UK could be doing more of, or differently, to improve awareness of lupus?

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* 12. Do you think that the annual Lupus Awareness Month (October) campaign is making a difference?

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* 13. Is there anything else you would like to share?