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Project Description

This group is designed to serve as an open-source platform for addressing queries related to real-world data (RWD). We aim to create an environment similar to Stack Overflow, where you can receive answers to your questions.

Every organisation develops internal documents outlining learnings and best practice for conducting research with real-world data. This might include database quirks, standard cohort definitions and preferred algorithms. Currently, there’s no open-source alternative to these internal documents, which leads to duplicated errors, slower individual learning and slower advancement of real-world evidence at the industry level. By creating an open-source platform, we hope to prevent duplication of effort, accelerate the evolution of the real-world evidence space and ultimately offer better insights for participants and patients. Stakeholders include data vendors, pharmaceutical companies and any other entities that use real-world data.

We are conducting this survey to assess interest, identify preferred methods of communication and gather initial questions to be addressed.

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* 1. On a scale of 1 to 10, how interested would you be in an open-source Q&A forum dedicated to RWE?

1 (Being Not at all interested) 5 10 (Being extremely interested)
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i We adjusted the number you entered based on the slider’s scale.

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* 2. In your opinion, what would be the most effective method for the community to post questions and answers?

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* 3. On a scale of 1 to 10, how interested would you be in a private channel (e.g. with data vendors or the FDA) if we could dedicate resources to answering and triaging the community’s questions promptly and comprehensively?

1 (Being Not at all interested) 5 10 (Being Extremely interested)
Clear
i We adjusted the number you entered based on the slider’s scale.

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* 4. What would be the most efficient method for the community to post questions and answers to the private channel?

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* 5. On a scale of 1 to 10, how interested would you be in a GPT-style chatbot or plugin that could provide instant answers based on a corpus of documents and Q&A?

1 (Being Not at all interested) 10 (Being Extremely interested)
Clear
i We adjusted the number you entered based on the slider’s scale.

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* 6. In your opinion, which RWE topics should the discussion board focus on initially?

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* 7. What is the most pressing question you would like to see addressed by the RWE Guidance forum?

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* 8. If you have used similar open-source platforms before, what were some features you found most helpful?

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* 9. What challenges have you faced in using real-world data, and how do you think this forum could help alleviate them?

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* 10. Do you have any specific expectations or suggestions for this open-source platform to better serve your needs?

0 of 10 answered
 

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