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PHUSE Real World Evidence Working Group survey
Project Description
This group is designed to serve as an open-source platform for addressing queries related to real-world data (RWD). We aim to create an environment similar to Stack Overflow, where you can receive answers to your questions.
Every organisation develops internal documents outlining learnings and best practice for conducting research with real-world data. This might include database quirks, standard cohort definitions and preferred algorithms. Currently, there’s no open-source alternative to these internal documents, which leads to duplicated errors, slower individual learning and slower advancement of real-world evidence at the industry level. By creating an open-source platform, we hope to prevent duplication of effort, accelerate the evolution of the real-world evidence space and ultimately offer better insights for participants and patients. Stakeholders include data vendors, pharmaceutical companies and any other entities that use real-world data.
We are conducting this survey to assess interest, identify preferred methods of communication and gather initial questions to be addressed.