Hearing Your Views, Shaping Our Direction

Positively UK provides peer-led support, advocacy and information to anyone living with HIV to manage any aspect of their diagnosis, care and life with HIV. Working in partnership with the NHS, our peer work is integrated at clinics across London, and across the UK via our national peer mentor training programme, Project 100. We run a range of peer-led support groups for women, heterosexual men and women, gay and bisexual men and young people. Our programme of workshops support people with a new HIV diagnosis, managing pregnancy and developing self-management skills. Our vision is of a nation where every single person living with HIV can access the best possible advice and support for the best possible health.

We are currently starting the process of renewing our five-year strategy and want to ensure that we hear the views of everyone who we work with, from the people living with HIV who might access our services and volunteer for us now or in the future, as well as our trained mentors, partner organisations and clinics across the UK.

We have already conducted a workshop with our staff and Trustees to find out what matters most to them about the organisation and our work. We asked what they thought matters most to those who access support from us, what makes us different, unique, or that we do better than anyone else and finally what work they think we should be doing moving forwards. We would now like to ask you those same questions so that we have a sense of what is most important to you in relation to the services and support we provide. We will follow this consultation by holding focus groups before drafting our new strategy at the end of the summer.  

 
Please take a few minutes to complete our short survey:
Please provide some basic personal information so that we know what matters most to different stakeholders:
Please select the gender that you most identify with:

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* 1. Please select the gender that you most identify with:

Please select the Sexuality you most identify with:

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* 2. Please select the Sexuality you most identify with:

Please indicate your age bracket below:

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* 4. Please indicate your age bracket below:

Location:

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* 5. Location:

Please select the category that best describes you:

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* 6. Please select the category that best describes you:

From the options below, please choose your own top 5 answers, rated in order of importance, from 'Essential' being the highest and 'Not as Important', the lowest. 

There is a space below if you would like to add something that we have not included:


What matters most to you in relation to the services Positively UK provides?

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* 7. What matters most to you in relation to the services Positively UK provides?

  Essential Very important Important Somewhat important Less Important
All frontline staff are HIV positive – we are peer led and lead by example
We create networks and communities and impact other agencies (organisations & clinics)
Professional – reliable and high quality services
We give people hope
Practical support (people experience real benefits)
We provide a safe space – trustworthy and confidential
Connection – the opportunity to meet others living with HIV
We listen
We have fun
We care
What do you feel we do best?

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* 8. What do you feel we do best?

  Essential Very important  Important Somewhat Important Less Important
We are peer led, and run
Provide support in HIV clinics
Project 100 and the peer support training
Collaborative work with other organisations
Workshops on HIV and related issues
Connecting communities (including via our national conference)
Empowerment – influencing decision-making personally and across the HIV sector
We don’t tell people what to do
Structured peer support
Results for people
What new or different work should we be doing in the future?

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* 9. What new or different work should we be doing in the future?

  Essential Very Important Important Somewhat Important Less Important
Partnership work with other specialist organisations outside of HIV
Deliver HIV training to staff/professionals in health & social care
Train other organisations in providing peer support
Training to get people with HIV into work or education
Explore digital provision of services
Combine health, wellbeing and social support
Support people with HIV to challenge stigma (speaking in public, schools etc.)
Explore social prescribing via GPs
Lead on reaching those who are not diagnosed or in care
Workshops on HIV and other health conditions
 
Thank you for taking the time to contribute your opinions to shape our future direction and plans!

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