The Words that Carry On fund will commission original research on the topic of personality disorder, autism or the connections between these two health issues. Please see note on the language below, particularly around personality disorder. These to topics are of interest to us, and the links between them, because of our experience of health service support. We are looking for help from a wide range of sources to assist us in our decision making on what research to fund. So we are keen to hear from people with personal experience of personality disorder and/or autism, academics, clinicians, service providers, policy makers, commissioners and advocates for better understanding of poor mental health and inclusive working with stakeholders.

We have come up with nine possible topics that could benefit from more research. We would like you to give us your opinion on these and suggest one of your own. The nine topics come from brief scoping work we asked the McPin Foundation to do for us, to start us off. This involved talking to people who knew Lindsay Riddoch, to whom the Words That Carry On fund is dedicated, and people who work in the fields of mental health and autism research and practice.  Lindsay campaigned on personality disorders, autism and complex mental health needs because she lived and died with them. Our aim is to identify effective ways of helping those with similar problems.  

We will use feedback from the survey to help us decide what to fund. Your views are very gratefully received and will be treated in confidence, stored in accordance with the Data Protection Act 1998. We thank you for spending the time helping us. Closing date for survey: 15th February 2019.

Note about language: We recognize the contested and controversial nature of the label of personality disorder.  Diagnostic categories and the medical model have been used to describe a group of behaviours that people can demonstrate. In the absence of an acceptable alternative, we use the term personality disorder to describe the group of people who are given the diagnosis of personality disorder, never that they are that disorder.  However we encourage responses drawing on alternative frameworks, models and language, particularly those which give voice to people with lived experience.

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