Thank you for taking part in this short anonymous survey for people in the UK who have been diagnosed with bladder cancer.

Your responses will help us learn how Covid-19 has affected bladder cancer patients and help us to understand how the pandemic has impacted people’s bladder cancer treatment and what the longer-term implications may be.

Please ensure you have read and understood the information below before starting the survey. The survey will ask you some questions about your bladder cancer, the treatment you have had, or is planned, and some questions about how, if at all, Covid-19 has affected your treatment or monitoring. If there are any questions you do not wish to answer you can just leave them blank. This survey will take approximately 8 minutes to complete and is open for people over 18 years old, living in the United Kingdom and is entirely voluntary. 

If you have any questions about this survey please email ABC UK at info@actionbladdercanceruk.org or call 0300 302 0085.

This anonymous survey is conducted by Action Bladder Cancer UK and the data collected will be held securely and according to UK GDPR regulation. The results of the ABC UK Covid-19 survey will be shared once responses have been collected.

Please click OK to confirm that you are at least 18 years old, that you have read the information about the survey, and that you voluntarily agree to take part in it. All responses to this survey will be stored anonymously, in accordance with GDPR.

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* Which UK country do you live in?

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* Please let us have the first part of your postcode - this will let us know what region you are in without being able to identify you (you may leave this blank if preferred).

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* What is your age?

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* Gender

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* Are you in work or retired?

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* What type of bladder cancer do you have?

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* What treatment are you having/have you had? (Please tick all that apply)

  Is your treatment PLANNED? Is your treatment ONGOING? Is your treatment COMPLETED?
First TURBT ± Single dose of Mitomycin
Ongoing checks (cystoscopies) and outpatient appointments
Course(s) of Mitomycin
A course/courses of BCG
Cystectomy alone
Radiotherapy alone
Chemotherapy before cystectomy
Chemotherapy after cystectomy
Chemotherapy before radiotherapy
Chemotherapy after radiotherapy
Chemotherapy alone

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* Have your planned treatment and monitoring arrangements been altered due to Covid-19?

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* Has your treatment plan been changed from cystectomy to radiotherapy?

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* Has your treatment plan changed from radiotherapy to cystectomy?

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* If there have been changes – how did the hospital notify you?

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* Has the timescale/date for your planned surgery been changed due to
Covid-19? (If not applicable move onto next question)

  Postponed Cancelled Going ahead as planned
First TURBT
Subsequent TURBT
Cystectomy

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* Do you feel Covid-19 has made it more difficult to communicate with your hospital team?

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* Have you been offered alternative methods to attending hospital appointments?

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* Have you been advised to shield? (ie: You’re strongly advised to stay at home at all times and avoid any face-to-face contact if you’re clinically extremely vulnerable to protect yourself)

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* If you weren’t placed in the shielding group do you feel that you should have been?

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* Have you decided to self isolate yourself without being directly advised to?

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* Have you experienced any difficulty in accessing essential support whilst shielding or self isolating?

  Getting medications or medical supplies Getting food Other
Yes
No

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* How worried do you feel about Covid-19 affecting your bladder cancer treatment or monitoring ?

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* How concerned are you about attending hospital currently for treatment and follow up appointments?

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* What might help you feel safe when you do return to hospital for treatment? (Please tick all that apply)

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* Is there anything else you would like to tell us?

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* THIS IS THE END OF THE SURVEY. THANK YOU VERY MUCH FOR TAKING PART.

Before you submit your responses, if you would like ABC UK to keep in touch with you about this survey, other surveys and bladder cancer information for patients, please let us have your preferred contact details. This information is not part of the survey and will be stored confidentially and will not be passed on to anyone else.

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