My name is Jeanna Song and I’m recruiting families for a Master level research project associated with the Queen’s University. Please find detailed study information below. Thank you!
The current study aims to explore the differences in behaviors, symptoms, and experiences, for boys and girls with diagnoses in (or are under investigation for) ASD. Hopefully the findings will bring lights on the reasons behind this diagnostic gender gap and make it easier for girls with autism to receive diagnoses and treatments.
Parents of children (both boys and girls under 18 years of age) with Autism or are under the investigation for autism are invited to participate in the study carried out by a Master level research student from Queen’s University at Belfast. The study includes a short online questionnaire regarding behaviors of the children. The questionnaires should take about 20-30 minutes to complete.
To gain a further understanding of the experience of being a girl with autism, we are also inviting parents of female participants (under 18 years of age) and those girls between 6-18 years old to complete a short interview (takes about 30 minutes). Interviews can be arranged to take place in public settings (ASD clubs, coffee shops, etc.) for families living in Belfast, Northern Ireland, or it can be scheduled over the phone/Skype.
If interested, you will receive separate consent forms for the interview. This is only a consent to participate in the questionnaires.
You might be asked to provide contact information along with the consent form, which will be used for contact purpose only (sending links to online questionnaires, setting up interviews, and contacting school teachers/ASD club leaders).
After we receive your consent to participate, you will be assigned a study ID number, which will be used to identify your data from the questionnaires and interviews. None of the data you provide will be labelled by your name or any other identifiable information.
Once the data collection process is complete, the contact information will be destroyed and discarded in line with QUB guideline. All data collected for the study will also be destroyed under the QUB guideline after five years.
You have complete freedom to choose whether or not to participate in this study. If you wish not to be part of the research, there will be no consequences for you or your child, nor would it hurt your relationship with the organizations. You can choose which part of the study you wish to participate in (you will give separate consents to complete the questionnaires, participate in the interviews, or for us to contact the teachers/ASD club leaders), and skip any questions on the questionnaire/during the interview. You are also free to withdraw from the study at any time up until the point of data analysis (expected September 5th, 2018), with no explanation needed.