PARTICIPANT INFORMATION SHEET

PARTICIPANT INFORMATION SHEET
 
Title of Project: An investigation into the impact of diet and lifestyle on the management of lipoedema

Name of Investigators: Dr Jessica Jin; Dr Louise Dunford, Hana Hussain; Sharie Fetzer; Mary Warrilow

Invitation to study
Thank you for taking part in Lipoedema UK and De Montfort University research. With your help we can start to unlock some of the complex issues surrounding lipoedema. 

If you are a UK resident, aged 16 or over, with either clinically diagnosed or self-diagnosed lipoedema, you are invited to join the study. This study has been reviewed and approved by De Montfort University, Faculty of Health and Life Sciences Research Ethics Committee.

About the survey
The survey is about your diet and lifestyle and their impact on your lipoedema management. The survey should take about 20-30 minutes to complete. All the information you provide will be kept confidential.
 
Participation and Consent
Your participation in this study will help us understand what works and what doesn’t work in your lipoedema management. The study results will help us navigate and inform the development of our next-stage research on finding a dietary and lifestyle solution to improving lipoedema conditions for the UK patients in general. Published research findings via scientific journals and conferences will be communicated through Lipoedema UK’s website, member newsletters and social media channels such as Twitter.

If you would like to receive the study results and any future study opportunities related to dietary and lifestyle management of lipoedema, please provide your name and contact details by giving consent first at the end of the survey.

Your name and contact details will be removed from your answers before the data is analysed to keep the results anonymous and they will be securely stored on a password-protected web-based database managed and accessible by Lipoedema UK only. All survey results will be kept on a password-protected database at the university for a five-year period after the study has been completed. 
 
You can withdraw from the study at any time, without giving a reason, by not completing the survey. Data will not be collected upon a study withdrawal. However, a withdrawal cannot be done once the survey is completed. There are no disadvantages or risks of taking part in this study.


By Clicking 'Next' to continue to the last page of the Participant Information Sheet.</
 
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