My name is Jeanna Song and I’m recruiting participants for a Master level research project associated with the Queen’s University. Please find detailed study information below. Thank you!
The current study aims to explore the differences in behaviors, symptoms, and experiences, for boys and girls with diagnoses in (or are under investigation for) ASD. Hopefully the findings will bring lights on the reasons behind this diagnostic gender gap and make it easier for girls with autism to receive diagnoses and treatments.
You are invited to participate in the study carried out by a Master level research student from Queen’s University at Belfast. The main study include a short questionnaire which takes less than 30 minutes to complete.
You might be asked to provide contact information along with the consent form, which will be used for contact purpose only (sending links to online questionnaires and setting up interviews).
After we receive your consent to participate, you will be assigned a study ID number, which will be used to identify your data from the questionnaires and interviews. None of the data you provide will be labelled by your name or any other identifiable information.
Once the data collection process is complete, the contact information will be destroyed and discarded in line with QUB guideline. All data collected for the study will also be destroyed under the QUB guideline after five years.
You have complete freedom to choose whether or not to participate in this study. We have only contacted you because the parents thought that you might be interested. You are under no obligation to take part. If you wish not to be part of the research, there will be no consequences for you, nor would hurt your relationship with the family. It is clearly stated in the parental information sheet that teachers and ASD club leaders can decide whether or not to participate on their own. You can choose which part of the study you wish to participate in (questionnaires or interviews) and skip any questions on the questionnaire/during the interview. You are also free to withdraw from the study at any time during the study up until the point of data analysis (expected September 5th, 2018), with no explanation needed.
The data collected through this study will aid the understanding in reasons behind the ASD diagnostic gender gap and will be used to help girls with/under investigation for autism. The finding from this study will hopefully bring awareness to professionals and consequently improve the current difficulties parents of girls have in receiving ASD diagnoses and treatments.