KS / CHH survey 3 - Body image, sex and sexuality KS / CHH survey Number 3. All questions are entirely optional. All answers are totally anonymous. Please only answer the questions you feel comfortable with. OK Question Title * 1. At what age was your first sexual experience with another person, including oral, mutual masturbation or penetrative sex. Less than 13 years old 13 to 15 years old 16 years old 17 years old 18 years old 19 years old 20 years old 21 years old 22 years old 23 years old 24 years old 25- 30 years old 31 -35 years old 36 - 40 years old Over 40 years old Have had no sexual experience with a partner, but wish to Have had no sexual experience with a partner, through choice Choose not to answer Other (please specify) OK Question Title * 2. Please rate this statement."The physical symptoms associated with having KS / CHH have prevented mefrom having the amount of sexual experience and or number of sexual partners I would like to have had by my age." Strongly agree Agree Somewhat agree Neither agree nor disagree Somewhat disagree Disagree Strongly Disagree Do not wish to have sexual experience Choose not to answer Other (please specify) OK Question Title * 3. Did you become sexually active with another person before your diagnosis of KS / CHH - including oral, mutual masturbation and penetrative sexual activity? Yes, before diagnosis No, became active after diagnosis Not sexually active Other (please specify) OK Question Title * 4. What physical aspects of having KS / CHH has prevented you from being sexually active Small penis size Lack of testicle size Small breasts Looking far younger than your actual age Lack of libido due to low hormones Fear of what a partner might say if they saw you naked Have had no problems at all with sexual activity Have chosen to be asexual Prior bad experience prevents further attempts None, just waiting for the right time or right partner Choose not to answer Other (please specify) OK Question Title * 5. Which of these emotions, feelings or conditions could be used to describe yourself? More than one might apply. Gender dysphoria - emotionally and psychologically identify opposite to your physical anatomy at birth Intersex - do not consider yourself to be either male or female Poor body image Low self esteem Anxiety in being able to talk to others in social situations Feeling isolated from your own age group Looking much younger than your true age causes problems in finding partners in your age group Frustration and annoyance in not being as sexually active as your friends Choose not to answer Other (please specify) OK Question Title * 6. Penis length (flacid) Less than 1 inch. Between 1 and 2 inches Between 2 and 3 inches Between 3 and 4 inches Between 4 and 5 inches Between 5 and 6 inches 6 inches or more Not applicable (female or transgender) Never measured and do not wish to do so Do not wish to answer Other (please specify) OK Question Title * 7. Penis length (erect) Less than 1 inch Between 1 and 2 inches Between 2 and 3 inches Between 3 and 4 inches Between 4 and 5 inches Between 5 and 6 inches Between 6 and 7 inches Over 7 inches Not applicable (female or transgender) Not measured and have no wish to do so Do not wish to answer Other (please specify) OK Question Title * 8. Are you content with the girth or thickness of your erect penis Am content with both length and thickness when erect Am content with length but not thickness when erect Am content with neither length or thickness when erect Am content with thickness but not length when erect Not applicable (female or transgender) Do not wish to answer Other (please specify) OK Question Title * 9. Have you ever had physical sexual contact with a person of your same gender? -including oral, mutual masturbation or penetrative sex Yes, only once, have no wish to repeat the experience Yes, only once, but would like to repeat the experience No, the very idea has no interest to me No, but I have thought about it and possibly would in the right circumstances Yes, I have a regular partner(s) Have had sexual experience with both sexes Other (please specify) OK Question Title * 10. Do you have a defined sexual orientation? Heterosexual Homosexual Bisexual Asexual Pansexual Sexually active but without a defined label Lesbian Queer Unsure / curious Transgender Choose not to answer Other (please specify) OK Question Title * 11. In non-sexual terms, but purely as an illustration of the physical symptoms would seeing medically taken naked photos of other patients with the condition serve any benefit? No, totally not. Have no desire to see another KS person naked Yes, as purely to compare with my own development it might be useful to see how other patients look Unsure Prefer not to answer Other (please specify) OK Question Title * 12. Do you view pornographic videos or photos in order to compare your development (breast size, testicle size or penis size) with other people Yes, I compare my own development to the people I see in porn No, I watch porn but solely for sexual pleasure and not for comparing development I have never watched porn Choose not to answer Other (please specify) OK Question Title * 13. Have you had an abusive or rude comment about your development afterhaving sexual activity with a partner No, once sexually active I have not received any negative comments about my development Yes, only once but it did not stop me having experience with other people Yes, mentioned in the heat of an argument or break up with a partner No, the very thought of rude comments prevents me from seeking out sexual experience. Not sexually active by choice. Choose not to answer. Other (please specify) OK Question Title * 14. How many different sexual partners have you had? None 1 2 3 4 Between 5 and 10 Between 11 and 20 Over 20 Choose not to answer OK Question Title * 15. Please rate this statement:For a patient with KS / CHH"Any hesitation or nervousness in engaging in sexual activity with a partner can be overcome. The pleasure and intensity of activity can overcome nervousness with the right partner" Strongly agree Agree Somewhat agree Neither agree nor disagree Somewhat disagree Disagree Strongly Disagree The fear of rejection is too high to attempt to have sexual activity Do not wish to have sexual activity yet Choose not to answer Other (please specify) OK DONE