KS / CHH initial survey Kallmann syndrome / Congenital Hypogonadotropic Hypogonadism Anonymous survey number 1. Basic treatment questions. OK Question Title * 1. How old were you when first diagnosed. Birth - 6 months old 6 moths old - 12 years old 13 years old 14 years old 15 years old 16 years old 17 years old 18 years old 19 years old 20 years old 21 years old 22 years old 23 years old 24 years old 25-34 35-44 45-54 55-64 65+ OK Question Title * 2. How is your sense of smell Normal Impaired No sense of smell OK Question Title * 3. What form of hormone replacement therapy are you on Testosterone injection Testosterone gel Oestrogen tablet Progesterone tablet None Oestrogen gel Combined oral contraceptive pill Gonadotropin / fertility treatment Other Oestrogen and progesterone taken separately OK Question Title * 4. Have you been on gonadotropin or fertility treatment On it currently Been on it previously but not currently Not on it but would like to try if available On gonadotropin therapy for testosterone replacement only Have no interest in this form of treatment OK Question Title * 5. Have you heard of GnRH pulsatile therapy Have used it in the past Using it currently. Aware of it but unavailable Unsure what this form of therapy entails. OK Question Title * 6. Are you seen by an endocrinologist or general physician Seen by an endocrinologist who has specialised knowledge of KS / CHH Seen by an endocrinologist with no apparent specialised knowledge of KS / CHH Not seen by an endocrinologist, seen by local care doctor only Not currently under medical care Seen by gynaecologist only Seen by urologist / andrologist only. OK Question Title * 7. If taking testosterone injections how often do you have the injection Every week Every 14 days Every 21 days Every month Between every 10 and 12 weeks Longer than 12 weeks Not applicable OK Question Title * 8. If taking oestrogen, what method are you using Daily tablet Daily gel Monthly cyclical pill Tr-mothly cyclical pill Female, but do not take oestrogen treatment Not applicable Daily patch 3 monthly oestrogen ring OK Question Title * 9. Apart from delayed or absent puberty and / or anosmia what othersymptoms do you have ? Mirror movements of the hands Fused fingers or toes Missing or deformed teeth Cleft lip / palate Scoliosis Ichthyosis Hearing loss Problems with eyesight or eye movement Colour blindness Absence of one kidney None of the above OK DONE