KS / CHH survey 4 - Depression & emotional aspects. Question Title * 1. Do you or have you ever suffered depression which you directly relate toKS / CHH No, never had depressive episodes directly linked to my condition Yes, have had depressive episodes in the past directly linked to my condition Yes, have frequent and on-going depressive episodes directly linked to my condition Yes, have depressive episodes but not directly related to KS / CHH Do not wish to answer Other (please specify) OK Question Title * 2. Have you ever been prescribed medication or undergone counselling for depression in addition to regular hormone replacement therapy?Tick all that apply. On no medication at all. - Hormone replacement or anti-depression medication On hormone replacement therapy only. On anti-depression medication only. On both hormone replacement therapy and anti-depression medication Have had counselling sessions in the past Undergoing counselling sessions at present Would undergoing counselling if available Have no need for counselling Do not wish to answer Other (please specify) OK Question Title * 3. Would you consider being off medication as being a major cause of depression?Tick any that apply. No, my depressive episodes do not seem related to me being on treatment or not Yes, I feel my depressive episodes are directly linked to whether I am on hormone replacement therapy or not. No, I feel like I have never experienced depressive episodes related to my condition Yes, I consider my depressive episodes can relate directly to my hormone levels while on treatment. I have had less depressive episodes since I was diagnosed. Do not wish to answer Other (please specify) OK Question Title * 4. Self harm I have considered but not experienced self harm in response to my experiences coping with KS / CHH I have had episodes of self harm in the past in response to my experiences coping with KS / CHH I have never considered or experienced self harm I had considered self harm before diagnosis but not since Choose not to answer Other (please specify) OK Question Title * 5. What impact do patient groups on Facebook and other sites have on yourexperience with KS / CHH.Tick any that apply Facebook groups are a good source of medical information on KS / CHH Facebook groups are a good way of connecting with fellow patients but would not trust them for medical information on KS / CHH I am pleased the Facebook groups exist and I try to contribute as much as I can I am pleased the Facebook groups exist but I do not feel any need to post anything. The fact that I know that I am not alone with my condition is enough for me, I do not need to participate in the group I am happy just to be a member. Patient groups can have a negative influence on my experience by highlighting the worse aspects of the condition. I wish more people who have had more positive experiences with KS / CHH would post in the Facebook groups. Choose not to answer Other (please specify) OK Question Title * 6. Which emotional problems would you directly link to having KS / CHH?Tick all that apply. Depression Anxiety in talking to people at all times Anxiety in talking to people in social situations or non-work related situations Feeling isolated within a social group of friends or colleagues Socially introverted Bipolar disorder Constant feeling of pessimism Constant feeling of hopelessness Dysphoria (but not specifically gender dysphoria) Gender dysphoria Choose not to answer Other (please specify) OK Question Title * 7. Please rate this statement."I can not escape the fact I have KS / CHH. I am reminded of the fact I have this condition every day and it has a major impact on my emotional wellbeing." Strongly agree Agree Somewhat agree Neither agree nor disagree Somewhat disagree Disagree Strongly Disagree Other (please specify) OK Question Title * 8. Which of these do you think are important in helping you deal with having KS / CHH.Tick all that apply and add your own suggestions. Early diagnosis Treatment starting in teenage years Gaining correct and up to date information about the condition Being able to communicate with fellow patients through social media Being able to contact medical specialists with direct knowledge of KS / CHH treatment Meeting fellow patients in person through patient meetings Being able to access fertility treatment easily Watching You Tube videos from fellow patients talking about their own experiences with the condition Forming a relationship with a partner Being confident to have sexual relations Choose not to answer Other (please specify) OK Question Title * 9. What one suggestion (if any) would you make that could make your life easier in dealing with KS / CHH. OK DONE